PWSA | USA and FPWR will host a combined Community Conversation on Tuesday, November 9th at 8:00 p.m. EST. PWSA | USA CEO Paige Rivard and FPWR Director of Research Programs Theresa Strong will discuss the outcome of the November 4th FDA Advisory Committee Meeting regarding LV-101 carbetocin nasal spray. This will serve as an...
Category: Event
Show Your Support for the 2021 Angel Drive!
Due to the generosity of our donors, your donation to the Angel Drive will now be matched dollar for dollar up to $60,000. Help us reach our goal of raising $120,000 by December 31, 2021! The 2021 PWSA | USA Angel Drive kicks off TODAY and we are counting on YOU to be our partner...
PWSA | USA’s 2021 Angel Drive Campaigns Kicks Off November 1st!
The 2021 Angel Drive Campaign kicks off November 1st and we're counting on YOU to be our partner in hope! Every year, more than 2,000 individuals and families turn to PWSA | USA to find help when they need it most. Ours is the only organization that provides the comprehensive support, tools, and resources families need...
Community Conversations Webinar: For Families to Discuss Grief and their Fears for the Future
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Webinar Opportunity: Advocating for New Treatment for PWS
When: October 8, 2021 | 11:30 am EST Advocating for treatments for PWS has never been more important! Join this session co-hosted by PWSA | USA and FPWR to learn how you can make the greatest impact with the FDA. It is vital the FDA understand our community’s needs, preferences, and experiences. In this session,...
Community Conversation Opportunity: For Families to Discuss the Impacts of Dr. van Bosse leaving Shriner’s Hospitals
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Webinar Opportunity | Homeschool: What You Should Know
We are excited to offer a special webinar Monday, August 9, 2021 at 7:30 p.m. EST on homeschooling and PWS. The COVID-19 pandemic forced parents to make difficult decisions regarding their children’s education. Join Julie Casey and Danielle Warmuth to learn from veteran homeschoolers about curriculums, services, and socialization. REGISTER IN ADVANCE HERE __________________________________________________________________________________________________________________ ...
Prader-Willi Syndrome Association Announces First Virtual Convention
FOR IMMEDIATE RELEASE: January 14, 2021 Sarasota, Florida: Prader-Willi Syndrome Association | USA (PWSA | USA) is pleased to announce its upcoming 36th National Convention is moving to an all-new virtual format. Due to the ongoing health concerns brought forth by the COVID-19 pandemic, the organization will provide members of the Prader-Willi syndrome community with a variety...
Running for Research
PWSA | USA is happy to announce its partnership with Running for Research, a diverse group of runners dedicated to raising funds for the Prader-Willi Syndrome Research Fund at the University of Florida and Dr. Jennifer Miller’s work to identify effective treatments for children and adults with Prader-Willi syndrome (PWS). Since its founding in 2018,...