Supporting Research That Makes Each Today a Better Tomorrow

Research Statement

At PWSA | USA, we work to integrate what we have learned about the needs of our families through our support programs with research that we think will make an important and practical difference in the lives of those affected by PWS.

Grant Program

Prader-Willi Syndrome Association  USA is pleased to offer grant assistance for scientific researchers with an interest in improving the lives of those with Prader-Willi syndrome (PWS).

Post-Mortem Tissue Donation

As research into the biology of Prader-Willi syndrome (PWS) has become more sophisticated, studies on the postmortem human brain have become an increasingly important tool for understanding the neuropathology of the syndrome.

Global PWS Registry

The Global PWS Registry is a powerful tool for the PWS community to advance understanding of PWS, areas of unmet need, standards of care, and new therapies.