Name

Location

Contact/Phone/
Web

Providers/
Clinicians

Frequency

Funding

7920 Frost Street, Suite 200
San Diego, CA

Dr. Lynne Bird (858) 966-5840
Website

Clinical Geneticist, who is a pediatrician
Acts as a Case Manager
Endocrinologist, Nutritionist & Social Worker

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Grant from Prader-Willi California Foundation provides salary support for the Social Worker and Nutritionist
Physicians each submit a bill

Division of Endocrinology
Prader- Will Clinic @ Thompson Autism Center

170 S. Main St.
Orange, CA 92868

Phone Numbers:
714-288-7651
714-462-1837
Fax:
714-288-7379
Website

Endocrinologist, Endocrine NP, Social Worker, Nutritionist, Behavioral Pediatrician & Pulmonologist

Twice a month

Funding/Billing: Private insurance, MediCal
Grants from Prader Willi California Foundation

Campus
Ambulatory Building

13123 E 16th Ave,
Aurora, CO 80045

Dr. Christine Chan, Pediatrics
Laura Fellows, RN:
(720) 777-2133
PWS Clinic:
(720) 777-6128


Website

Clinical Social Worker, Endocrine Nurse (Laura Fellows RN), Genetics, Pulmonologist, Orthopedics, ENT (Ear, Nose, Throat), Nutritionist, Orthopedics, Pediatric Endocrinologist, Pediatrician, Physical Therapist, Speech Therapist, Occupational Therapist

Every Second Friday of the month

Funding/Billing: PWSA Colorado/ Social Worker
Physicians bill separately Therapists, Clinic Coordinator – paid by Children’s Hospital

1699 SW 16th Ave
Gainesville, FL 32608

Jennifer Miller (352) 265-3422
(DIAB)
Daniel J Driscoll, MD, PhD
(352) 294-5050
Mary Wagner, M.D.
(352) 273-8380

Website

Endocrinologist, Geneticist,
Pulmonologist

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Divisional members regularly evaluate
and follow individuals with Prader-Willi
syndrome in our outpatient clinics. 

University of Iowa
Children’s Hospital

100 Hawkins Drive
Iowa City, IA 52242-1011

Center for disability scheduling:
(319) 353-6900
Option 1
Need Referral from PCP
Website

Nutritionist, Speech/ Language,
Education, Social services,
Physical Therapist, Occupational
Therapist, Psychiatrist,
Vocational, Geneticist,
Orthopedics, as needed. All
ages are seen

No specific clinic
time

Funding/Billing: through the
University system

200 University Avenue East
St. Paul, MN 55101

Dr Ainslie (651) 578-5013 he is here only twice a month
Main Hospital (651) 291-2848
Appointment: 651-290-8707
Website


Pediatric Endocrinologist, Nutritionist, Social worker

Depends on the patients

Clinic Charge (includes the nutritionist and the nurse)
Physicians bill from their office

2401 Gillham Road
Kansas City, MO 64108

Kelsee Halpin, MD, MPH
Emily Paprocki, DO.
Endocrinology Division: (Shannon to schedule appointment)
Phone:
(816) 960-8803
Email: PWS@cmh.edu
Website

Endocrinologist, Genetic Counselor, Nutritional Services, Orthopedics, Psychologist, Sleep Medicine, Social Worker & Weight Management.

First Wednesday of the month

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101 Renee Lynne Court, Carrboro, NC 27510

Kristie Turcott (919) 966-2074
Yezmin Perilla-Young, MS, CGC: (919) 966-9568
Main:
(919) 966-5171
Email: yperilla@email.unc.edu
Email: labraun@ad.unc.edu
Website

Genetic Counselor (Kristie)
Geneticist
Nutritionist, Speech Therapist, Physical Therapist, Child Psychologist, Endocrinologist, Psychologist, Social worker & Speech pathologist.

Once every other month

The separate providers bill for their services
State Department of Health contract – a small portion

380 Butterfly Gardens Drive, Columbus, OH 43215
4th Floor

Katie Anglin, RN
PWS Clinic:

(614) 722-4425
Website

Endocrinologist
Endocrine Nurse Coordinator
Geneticist, Genetic Counselor, Dietician, Social Worker, Psychologist
Sleep Medicine & Neurology.

Twice a month

Funding/Billing: private insurance, Medicaid

6621 Fannin Street
Houston, TX 77030
GI Clinic

Betsy Hayslett, RN:

(832) 822-461
PWS Clinic:
832-822-3131
Website

Providers/

Clinicians:
Nutritionist
Gastroenterologist
Social Worker – as needed.

Two Clinics every other month

Funding/Billing: Private insurance, Children’s Medicaid Dr. Schiemann will also see patients at Johns Hopkins in Baltimore, Maryland

University of Utah Medical Genetics

University of Utah South Main Clinic
3690 South Main Street
Salt Lake City, UT 84115

Debbie Mason, RN:
(801) 712-0501
Website

Geneticist, Endocrinologist, Pediatric Sleep, Specialist/Pulmonologist, Psychiatrist, Phycologist / Behavior, Nutritionist, Speech Therapist, Physical Therapist, Occupational Therapist.

Once every two months

Funding/Billing:
Private insurance, Medicaid, State funding

4575 Sand Point Way NE Seattle, WA 98105

To schedule an appointment call:
(206) 987-2640
Website

Genetic Counselor, Endocrinologist Neurodevelopmental Pediatric, Neurologist, Nutritionist, Pulmonary and sleep medicine & Psychiatrist, and behavioral medicine.

Every month

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Cook Children's Medical Center - Multidisciplinary Prader-Willi Syndrome Center 

801 7th Ave, Fort Worth, TX 76104

To schedule an appointment, refer a patient or speak to our staff, call: 682-885-7960 Website

Nurse Coordinator, Nutritionist, Orthotics, Pharmacist, Social Work, Child Life Specialist, Medical Assistant

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