Name | Location | Contact/Phone/ | Providers/ | Frequency | Funding |
7920 Frost Street, Suite 200 | Dr. Lynne Bird (858) 966-5840 | Clinical Geneticist, who is a pediatrician | -- | Grant from Prader-Willi California Foundation provides salary support for the Social Worker and Nutritionist | |
Division of Endocrinology | 170 S. Main St. | Phone Numbers: | Endocrinologist, Endocrine NP, Social Worker, Nutritionist, Behavioral Pediatrician & Pulmonologist | Twice a month | Funding/Billing: Private insurance, MediCal |
Campus 13123 E 16th Ave, | Clinical Social Worker, Endocrine Nurse (Laura Fellows RN), Genetics, Pulmonologist, Orthopedics, ENT (Ear, Nose, Throat), Nutritionist, Orthopedics, Pediatric Endocrinologist, Pediatrician, Physical Therapist, Speech Therapist, Occupational Therapist | Every Second Friday of the month | Funding/Billing: PWSA Colorado/ Social Worker | ||
1699 SW 16th Ave | Jennifer Miller (352) 265-3422 | Endocrinologist, Geneticist, | -- | Divisional members regularly evaluate | |
University of Iowa | 100 Hawkins Drive | Center for disability scheduling: | Nutritionist, Speech/ Language, | No specific clinic | Funding/Billing: through the |
200 University Avenue East | Dr Ainslie (651) 578-5013 he is here only twice a month | Pediatric Endocrinologist, Nutritionist, Social worker | Depends on the patients | Clinic Charge (includes the nutritionist and the nurse) | |
2401 Gillham Road | Kelsee Halpin, MD, MPH | Endocrinologist, Genetic Counselor, Nutritional Services, Orthopedics, Psychologist, Sleep Medicine, Social Worker & Weight Management. | First Wednesday of the month | -- | |
101 Renee Lynne Court, Carrboro, NC 27510 | Kristie Turcott (919) 966-2074 | Genetic Counselor (Kristie) | Once every other month | The separate providers bill for their services | |
380 Butterfly Gardens Drive, Columbus, OH 43215 | Katie Anglin, RN (614) 722-4425 | Endocrinologist | Twice a month | Funding/Billing: private insurance, Medicaid | |
6621 Fannin Street | Betsy Hayslett, RN: (832) 822-461 | Providers/ Clinicians: | Two Clinics every other month | Funding/Billing: Private insurance, Children’s Medicaid Dr. Schiemann will also see patients at Johns Hopkins in Baltimore, Maryland | |
University of Utah Medical Genetics | University of Utah South Main Clinic | Debbie Mason, RN: | Geneticist, Endocrinologist, Pediatric Sleep, Specialist/Pulmonologist, Psychiatrist, Phycologist / Behavior, Nutritionist, Speech Therapist, Physical Therapist, Occupational Therapist. | Once every two months | Funding/Billing: |
4575 Sand Point Way NE Seattle, WA 98105 | To schedule an appointment call: | Genetic Counselor, Endocrinologist Neurodevelopmental Pediatric, Neurologist, Nutritionist, Pulmonary and sleep medicine & Psychiatrist, and behavioral medicine. | Every month | -- |
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Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.