Family & Medical Support

PWSA | USA provides support to individuals diagnosed with Prader-Willi syndrome, their families, and care providers. We also educate medical providers, education professionals, and professional care givers about PWS and how to best support individuals with the syndrome.


PWSA | USA research seeks to support projects with the potential for immediate and high impact for the PWS community. The goal is to fast-track better treatment for the syndrome, and we proudly collaborate with partners representing pharmaceutical companies, research universities, and more to achieve that goal.

Public Policy and Advocacy

Raising awareness and advocacy are critical to effecting positive change in and for the Prader-Willi syndrome community. PWSA | USA is committed to empowering individuals with PWS and their families with resources and tools such as the Public Policy Action Center.