The wait is finally over! We are thrilled to reveal PWSA | USA's exciting new initiative, which our team has been hard at work preparing for. CEO Paige Rivard shares insight on our new Peer-to-Peer Fundraising platform, PWS Hope United, in the video below! Please join us next Tuesday, May 31st, for our May Community...
Category: Event
PWSA | USA’s Family Support Program Offers Help + Hope!
PWSA | USA's 2022 Family Support Campaign begins June 1, 2022 and will last through July 31, 2022 At all ages and stages, PWSA | USA’s Family Support team is always here to offer HELP + HOPE. From your first days in the NICU, to your loved one’s school IEP, food-seeking and behavioral needs, guardianship,...
The 2022 Giving Challenge is now LIVE!
The Giving Challenge starts TODAY (April 26, 2022) at 12:00 p.m. EST, and we need YOU to help us make the most of this incredible matching gift opportunity! Thanks to The Patterson Foundation, every gift made from noon today until noon tomorrow (April 27, 2022) will be DOUBLED up to $100. That means your gift...
FDA Advocacy in Action Webinar Registration Now Available!
Advocacy in Action presents… Engaging with the FDA: Opportunities and Boundaries WHEN: April 27, 2022 at 3:00PM EST REGISTER HERE As our community continues down the ever-evolving road of drug trials to enhance the lives of those who have Prader-Willi syndrome (PWS), PWSA | USA invites you to join us for a live webinar featuring two...
April Webinar Series to Provide Health Care Advocacy Tools, Resources for PWS Community
In April 2022, PWSA | USA will host the "Find Your Voice: Advocating for PWS Health Care" webinar series to provide helpful tools and resources on health care advocacy for our PWS community. Because there are very few health care professionals in our communities who have knowledge of the unique health issues of infants, children,...
PWSA | USA Volunteer Appreciation Award Nominations Now Being Accepted!
Help us honor our PWSA | USA volunteers! Do you know someone who deserves to be recognized for their service and dedication to PWSA | USA's mission and the PWS community? 2022 Volunteer Appreciation Award nominations are now being accepted through March 15, 2022. PWSA | USA will give out the following four awards: Advocacy...
Prader-Willi Association of New England’s Trivia Night
Mike “Sarge” Riley, Professional Sports Announcer and Boston Media Personality from 98.5 will host a virtual trivia night fundraiser for the New England Chapter of the Prader Willi Syndrome Association WHEN: Friday March 11 at 7:30 pm (about an hour) WHERE: Online-via Zoom You will receive a zoom link and a reminder before the event....
Clint Hurdle Hot Stove Dinner: A Look Back at the Past, Forward to the Future
As we get ready for the 8th Annual Hot Stove Dinner, which will be held on March 26th at the Key Royale Club on Anna Maria Island, Florida AND online for virtual guests, event host Clint Hurdle takes us on a trip down memory lane! Below, Clint shares how he and his wife Karla created...
IPWSO Conference 2022: Call for Abstracts
IPWSO 2022 - Call for Abstracts: Professional Providers and Caregivers - 7 & 8 July 2022, University of Limerick, Ireland. Please spread the word! The IPWSO 2022 Professional Providers and Caregivers Conference is now calling for abstracts for presentations to be submitted for the Conference on 7 and 8 July 2022 at the University of...
Giving Tuesday: Here’s How You Can Support PWSA | USA
Are you planning on making a year-end gift? Giving Tuesday is just one week away and is the perfect opportunity to show your support! Thanks to the generosity of an anonymous donor, your Giving Tuesday donation will be MATCHED dollar for dollar up to $13,000. Make a gift on November 30, 2021 and give twice the good...
8th Annual Clint Hurdle Hot Stove Dinner 2022: Save the Date!
We are excited to announce the date for the 8th Annual Clint Hurdle Hot Stove Dinner. Please mark your calendars for March 26, 2022 and save the date to join us on Anna Maria Island or online! Sip, Savor, and Support Prader-Willi Syndrome Association | USA while enjoying the outdoor event on the beautiful grounds...
Community Conversation: School Success Toolkits
REGISTER IN ADVANCE HERE