Information and resources for families whose child has recently been diagnosed with Prader-Willi syndrome.

Information and resources on a variety of medical issues affecting individuals who have Prader-Willi syndrome.

Explanation of terms often used when discussing Prader-Willi syndrome.

Check out our blog for timely resources and information.

Rare Disease Day takes place on the last day of February each year. Find out how you can get involved.

Choose from a number of recorded webinars and videos covering a variety of topics to watch and learn from.

Brand & Logo Guide

To learn more about PWSA | USA's brand guidelines, please visit: 2020 Brand Guide.

A number of archived resources including newsletters and informational publications.