Donor Advised Funds
Make an impact today!
Your support through Donor Advised Funds helps us continue to provide vital services, advocate for legislative changes, and advance critical research for Prader-Willi syndrome. Join us in making a difference in the lives of those affected by PWS.
A Donor Advised Fund (DAF) allows you to make a charitable contribution, receive an immediate tax deduction and then recommend grants from the fund over time. You can contribute to the fund as frequently as they like, and then recommend grants to PWSA | USA and your other favorite charitable organizations whenever you’d like. This allows donors to give when they can, then grant when it’s needed.
Contact your financial advisor to discuss the creation of a Donor Advised Fund to help you realize your philanthropic goals.
1. Initiate a Grant
Recommend a grant to Prader-Willi Syndrome Association | USA through your DAF sponsor. You can do this directly through your fund sponsor’s online portal or by contacting them directly.
2. Include Our Information
When recommending a grant, please use the following details to ensure your donation reaches us:
Organization Name:
Prader-Willi Syndrome Association | USA
EIN: 41-1306908
1032 E. Brandon Blvd. #4744 – Brandon, FL 33511
3. Notify Us
We would love to thank you for your generosity and keep you updated on the impact of your donation. Please consider notifying us of your intent to donate or contact us if you have any questions.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.