Provider Training

Provider Training, Prader-Willi Syndrome Association | USA

Supporting the Community Through Training

PWSA | USA supports the PWS community in a multitude of ways. This includes providing training to residential home and school staff. These trainings are an essential component of educating schools, homes, and providers to help our loved ones live safer, healthier lives. Kim Tula is our Alterman Family Support Counselor. She has recently traveled to a number of places to provide these trainings. We asked her to share details about her work in the community.

Types of Training

We offer specialized Prader-Willi syndrome (PWS) training for schools and residential providers, covering learning impacts, food security, behavior support, genetics, medical overview, and more. Attendees include school staff and various professionals. Our recent hospital training highlighted PWS-specific group home considerations.

Provider Training 2, Prader-Willi Syndrome Association | USA

Benefits of Training

Healthcare, Prader-Willi Syndrome Association | USA

Quality Care

Personalized support for PWS ensures food security and recognizes individual strengths.

Cheer Up, Prader-Willi Syndrome Association | USA

An Informed Community

Targeted training raises awareness, promoting understanding of PWS complexities and diversity.

Social Care, Prader-Willi Syndrome Association | USA

Supported Individuals

We prioritize individual strengths, providing tailored care for those with PWS.

Testimonials

“Your training was incredibly impactful for our staff and those who joined us. People have been writing to let me know how much they enjoyed it. It was really powerful for us. Thank you. It far exceeded our expectations-you were stellar to say the least. Great job and thank you.”

“Your training was incredibly impactful for our staff and those who joined us. People have been writing to let me know how much they enjoyed it. It was really powerful for us. Thank you. It far exceeded our expectations-you were stellar to say the least. Great job and thank you.”

Find a Provider Near You

Healthcare Directory, Prader-Willi Syndrome Association | USA

Healthcare Directory

Explore providers that work with PWS families.
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Residential Directory, Prader-Willi Syndrome Association | USA

Residential Directory

Find a residential care provider near you.
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Research PWS Clinics, Prader-Willi Syndrome Association | USA

PWS Clinics

Find clinics that support PWS research and care.
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Interested in Training?

We’ll be happy to connect with you!

Please visit our interest page, fill out the form, and a member of our team will be in touch soon.

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Pitolisant Issued Orphan Drug Designation , Prader-Willi Syndrome Association | USA

Pitolisant Receives Orphan Drug Designation

Pitolisant from Harmony Biosciences Receives Orphan Drug Status from FDA for Treatment of PWS The FDA has granted Orphan Drug status to pitolisant, the trial drug from Harmony Biosciences to treat excessive daytime sleepiness (EDA) and behavioral disturbances. The designation shows that the FDA considers pitolisant to be a promising treatment for people with PWS.  […]

Wednesday January 26 2024 800 PM EST 3, Prader-Willi Syndrome Association | USA

Neuren Pharmaceuticals Opens Third Trial Site for Phase II PWS Study

Neuren Pharmaceuticals is pleased to announce their third site participating in their Phase II, Open Label, PWS Study (Neu-2591-PWS-001) is now open for screening! Important information regarding this exciting milestone: Three sites are now open to enrollment! Rare Disease Research (RDR), located in Atlanta, GA, and Uncommon Cures, located in Chevy Chase, MD (8 miles outside of Washington, D.C.) and […]

Wednesday January 26 2024 800 PM EST 3, Prader-Willi Syndrome Association | USA

Neuren Pharmaceuticals Opens Second Trial Site for Phase II PWS Study

Neuren Pharmaceuticals is pleased to announce their second site participating in their Phase II, Open Label, PWS Study (Neu-2591-PWS-001) is now open for screening! Important information regarding this exciting milestone: Two sites are now open to enrollment! Rare Disease Research (RDR), located in Atlanta, GA, and Uncommon Cures, located in Chevy Chase, MD (8 miles outside […]