Clinical/Scientific Advisory Board (CSAB)
Daniel J. Driscoll, M.D., PH.D.
Chairperson
Professor of Pediatrics and Genetics
University of Florida Health Science Center
Gainesville, FL
David M. Agarwal, M.D.
Vascular and Interventional Radiologist
Indiana University School of Medicine
Indianapolis, IN
Moris Angulo, M.D.
Endocrinologist and Geneticist
Department of Pediatrics
Winthrop University Hospital
Mineola, NY
Suzanne B. Cassidy, M.D.
Medical Geneticist & Pediatrician
University of California
San Francisco, CA
Marilyn Dumont-Driscoll, M.D., PH.D.
Associate Professor, General Pediatrics
University of Florida Health Science Center
Gainesville, FL
Janice Forster, M.D.
Psychiatrist, Pittsburgh Partnership
Pittsburgh, PA
Linda Gourash, M.D.
Development Pediatrician
Pittsburgh Partnership
Pittsburgh, PA
Roxann Gross, PH.D., CCC-SLP
The Children's Institute
Assistant Professor
University of Pittsburgh
James Loker, M.D.
Pediatric Cardiologist
Bronson Methodist Children's Hospital
Kalamazoo, MI
Jennifer Miller, M.D., M.S.
Endocrinologist
University of Florida, College of Medicine
Gainesville, FL
Sue Myers, M.D.
Endocrinologist
St. Louis University
St. Louis, MO
Todd R. Porter, M.D., M.S.P.H.
Pediatrician
Children's Hospital Colorado
Aurora, CO
Ann Scheimann, M.D., M.B.A.
Gastroenterologist
Johns Hopkins School of Medicine
Baltimore, MD
Harold J. Van Bosse, M.D.
Orthopedic Surgeon
Shriner's Hospital for Children
Philadelphia, PA
Barbara Y. Whitman, PH.D.
Development Pediatrics
St. Louis University School of Medicine
St. Louis, MO
Suzanne B. Cassidy, M.D.
Medical Geneticist & Pediatrician
Division of Medical Genetics
Department of Pediatrics
University of California
San Francisco, CA
Mary Cataletto, M.D.
Pulmonologist
Prader-Willi Center
Winthrop University Hospital
Mineola, NY
Anastasia Dimitropoulos, PH.D.
Assistant Professor, Psychology
Case Western Reserve University
Cleveland, OH
Paige Rivard, MBA
Prader-Willi Syndrome Association | USA, CEO
Elisabeth M. Dykens, PH.D.
Professor of Psychiatry
Kennedy Center - Vanderbilt University
Nashville, TN
Andrea M. Haqq, MD, MHS, FRCP(C), FAAP
Chairperson
Associate Professor
Division of Pediatric Endocrinology
University of Alberta, Edmonton
Alberta, Canada
Ann Manzardo, PH.D.
Kansas University Medical Center
Kansas City, KS
Merlin G. Butler, M.D., Ph.D., FFACMG
Professor of Psychiatry and Pediatrics
Director, Research and Genetics
Director, Genetics Clinic at The University of Kansas Health System
Robert Nicholls, D.PHIL.
Professor of Genetic Psychiatry
Director, Birth Defects Laboratories
Division of Genetics
Department of Pediatrics
Children's Hospital of Pittsburgh of UPMC
University of Pittsburgh, Pittsburgh, PA
Stefan Stamm, PH.D.
University of Kentucky
Lexington, KY
David A. Stevenson, M.D.
Associate Professor
Department of Pediatrics
Division of Medical Genetics
Stanford University, Stanford, CA
Rachel Wevrick, PH.D.
Department of Medical Genetics
University of Alberta, Edmonton
Alberta, Canada
Jessica Duis, M.D., M.S.
Vanderbilt University Medical Center
Pediatric Genetics
Barbara Y. Whitman, PH.D.
Department of Pediatrics
St. Louis University School of Medicine
St. Louis, MO
Deepan Singh, MD, FAPA
Maimonides Medical Center in Brooklyn, NY
Vice-Chair of Ambulatory Psychiatry Services
Olivia Veatch, Ph.D.
KU Medical Center
Assistant Professor, Psychiatry and Behavioral Sciences
PWS Adult Advisory Board
Kate Kane
Co-Chair
Maryland
Trevor Ryan
California
Abbott Philson
Co-Chair
Maine
Shawn Cooper
Emeritus Member
Georgia
Victor Penta
Arizona
Brook Fuller
Emeritus Member
Michigan
Conor Heybach
Emeritus Member
Illinois
Andy Maurer
Emeritus Member
South Carolina
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.