PWS sibling Austin, 14, has been using his new entrepreneurial skills to raise money for PWSA | USA and awareness for our rare disease community in honor of his sister Lola. How? By making and selling jam! Read below to find out how Austin came up with this idea, how much he has raised so...
Category: Spotlight on Hope
READ: Delores Baker Shares Daughter, Lindsay’s, Success in 2022 Special Olympics Debut
Lindsay Baker, 31, who is living with Prader-Willi syndrome, made a splash at the 2022 Special Olympic Games in Orlando, FL by competing in and medaling in not one, but TWO swimming events! PWSA | USA had the opportunity to speak with Lindsay's mom, Delores, who shared her daughter's incredible journey from birth and her...
Spotlight on Hope: Isaac Davis
We are starting a new initiative to inspire HOPE for our PWS community! Spotlight on Hope will share stories about individuals living with PWS: stories about a recent triumph, big or small, overcoming a challenge, being recognized in their community, or anything that inspires hope or joy in their life and those around them. If...
69 Years with Prader-Willi Syndrome and Still Strong
Contributed by PWSA | USA Alterman Family Support Counselor Kim Tula, MS, CSW Prader-Willi syndrome was first diagnosed in 1956; only 63 years ago. With supportive living and specialized care, we are now seeing individuals with PWS living longer and healthier lives. Susan Booth (Boothie) is one of those people. Susan was born March 18,...