Category: Blog

Healthy Halloween Recipes

Silly Apple Monsters Ingredients: 3 green apples 3 tablespoons creamy peanut butter 2 ounces of sliced cheese (cheddar or colby jack both work) 2 tablespoons of pumpkin or sunflower seeds A package of candy eyes Instructions: Quarter the green apples and slice off the core and seeds. Carefully cut out a v-shape into the center...

SIGNATURE EXTENSION: Encourage your Congressman to sign Rep. Gottheimer’s letter urging House leadership to oppose the harmful changes to the ODTC!

Update: Deadline for signatures EXTENDED to close of business Monday, October 25, 2021 Rep. Gottheimer of New Jersey has drafted and is gathering signatures for a letter to House leadership urging them to oppose the harmful changes to the Orphan Drug Tax Credit. Please consider taking action by clicking the button below. Thank you for...

World Osteoporosis Day

Read PWSA | USA Clinical Advisory Board's full Consensus Statement Here. Wednesday, October 20th is recognized as World Osteoporosis Day. Osteoporosis is a condition that commonly impacts individuals living with Prader-Willi syndrome, and is typically diagnosed in adolescence and adulthood. The cause(s) of the osteoporosis is not totally clear, but it is thought to be...

Research Opportunity: Project Pathways

The Learning Lab for Intellectual and Developmental Disabilities at the University of Nebraska – Lincoln has reached out to us asking for any families interested in participating in a study they’re currently working on titled, Project Pathways. The purpose of this study is to assess the reading and writing profiles of students with intellectual and...

Donor Spotlight: Steve Leightman

PWSA | USA is special because of YOU, our donors, who passionately give to support our mission. It is because of your generous gifts that we can provide help and hope through family support, advocacy, and research efforts. To celebrate and honor your generosity, each month we will spotlight a donor and their story showcasing...

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