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Why You Should Hire Someone with Prader-Willi Syndrome

Persons with Prader-Willi syndrome (PWS) will work hard to earn your praise for a job well done. Given the correct environmental structure and supports, someone with PWS can be one of your hardest working and valued employees. When it comes to tasks like sorting, shredding, adhering stamps onto cards, repetitive responsibilities of this nature, and […]

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Summer Fun

Whether it’s 90 degrees and humid or 70 degrees and cloudy, summer is just around the corner. That means it’s time to prepare and plan your summer fun! For individuals with Prader-Willi syndrome, summer fun must include plans for heat precaution as they often have difficulty regulating body temperature and can overheat easily. Here are some […]

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Narcolepsy as a Characteristic of Prader-Willi Syndrome

Althea Shelton, MD and Jessica Duis, MD, MS Use of growth hormone requires a baseline sleep study prior to use and one at 8-10 weeks after initiation. Beyond this, when we see a child or adult in clinic who is having excessive daytime sleepiness and/or worsening behavioral concerns among other symptoms (e.g., headaches or bedwetting), […]

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Bringing Hope: A Mother’s Perspective

By Kristi Rickenbach, mother to Justice age 15 with PWS, board member, PWSA (USA)   “Optimism is the faith that leads to achievement. Nothing can be done without hope and confidence.” ~ Helen Keller   There are things that happen in our lives that we have no control over- things we wish we could change. […]

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A Grandparent’s Perspective

Our precious grandson Joshua was born six weeks early on December 27, 2017. He weighed just 4 lbs. 6 oz. and was 16.5 in. long. Joshua’s mom, our daughter, Kelly, was hospitalized for premature labor, but when Joshy was born a month later something wasn’t right. He was floppy, had a very weak cry, didn’t […]

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A Sibling’s Perspective

I was 10 years old when my brother was born in the summer of 2003. This was an extremely exciting time for me as I was the youngest of my three other siblings and couldn’t wait to finally have a little sibling of my own to pick on. Admittedly, I was also a little jealous […]

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PWS Awareness Month – Week 3

Not on social media?  No problem!  PWSA (USA)’s daily PWS Awareness Month posts are available right here for you to access anytime.   Day 20 Hypogonadism (a condition in which the testicles are not working the way they should) and cryptorchidism (undescended testes) are both common newborn males with PWS and can lead to delayed […]

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Exercise and Behavior

You’ve heard exercise is good for physical health, but did you know research also shows exercise is beneficial to mental health and mood? According to the Mayo Clinic, physicalactivity stimulates endorphins in the brain that elevate mood and encourage relaxation. Exercise can fend off depression and anxiety in individuals with PWS and can even combat […]

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