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Grandparents: Make Philanthropy a Family Affair

Helping Your Grandchildren “Experience” Philanthropy How often do you hear that today’s generation of children are self-absorbed or one of entitlement? That’s a pretty harsh statement to make, and one that I don’t entirely agree with. I think kids today don’t just want things – they want experiences too! Children see the needs of the […]

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Family Thriving Despite Daughter’s Rare Chromosomal Disorder

GRAND FORKS, N.D. — As soon as those two lines appear on a pregnancy test, thoughts start pouring in: what will my child’s life be like? Will it be a boy or girl? Will they grow up to be an astronaut? Find the cure for cancer? What will it be like being new parents? Steph […]

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Convention Connections: One Mother Shares How the PWSA (USA) Convention Helped Her and Her Family

A few days ago, I was chatting with a fellow special needs mama when she mentioned that there was a conference on the other side of the country for the condition her daughter has, but she wasn’t sure if she should go. It took everything in me to not tell, “WHAT?! ARE YOU NUTS?!” Instead, […]

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Top 6 reasons to be a member

Be a part of our Prader-Willi syndrome awareness month membership drive! Our goal is to recruit 500 members in May. Join the movement and our amazing community by becoming a member today. Whether you are joining as member for the first time or renewing your membership, your support is needed. Activate your membership here. Members […]

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Your food photos can make a huge difference!

Prader-Willi Syndrome Awareness Month is here. Like every year, PWSA (USA) is undertaking efforts towards raising awareness, promoting education, funding research, and supporting families. Even though we have come a long way, there are still many people out there who don’t know what it’s like to plan every day of their lives around hunger. We […]

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Only 3 More Days Left – A Gift from Us

Now through April 6th, when you renew or join as a member of PWSA (USA) you will receive a complimentary copy of our recently updated “Medical Alert Booklet.” This important medical guide is our way of thanking you for your membership support of PWSA (USA). In addition to the free booklet our members receive these […]

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Introducing PWSA (USA)’s Phone App!

We are proud to announce our free PWSA (USA) phone app is now live and available on all mobile devices! In today’s world, the way we communicate and learn is through our mobile devices. We search, read, send emails, play and even work while using these devices. It has become a part of us. This […]

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PWSA (USA) and Shriner Hospital Partnership

I am so pleased and privileged to announce the new partnership between PWSA (USA) and Shriner’s Hospitals for Children.  This relationship is exciting and, indeed, hopeful. During the 2015 PWSA (USA) National Conference I was fortunate to be introduced to Ms. Cheryl Stauss, former First Lady of Shriner’s International.  Cheryl served as First Lady of […]

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