Menu

Halloween Fun for Everyone!

Children, and many adults, look forward to Halloween with great anticipation…Bags full of sugary treats, scary decorations, and the thrill of trick or treating with friends and family…What could be more fun? But, what do you do for Halloween when your loved one has Prader-Willi syndrome? Can they safely participate in the festivities? The answer […]

read more

INDIVIDUALLY WE ARE RARE…TOGETHER WE ARE STRONG: PARENT MENTOR PROGRAM 
STRENGTHENS PWS COMMUNITY

On September 8, 2018, PWSA (USA) help a parent mentor workshop at the Monroe Carrell, Jr. Children’s Hospital at Vanderbilt University in Nashville, Tennessee. PWSA (USA) Parent Mentor Director, Diane Seeley, created the innovative workshop to educate parent mentors about a variety of topics, including current trends in dietary management, advantages and safety of various […]

read more

APPLIED BEHAVIOR ANALYSIS AND PRADER-WILLI SYNDROME, PART 1: EXPLAINING ABA

 By: Cindy Szapacs, M.Ed. BCBA  Before getting into the nuts and bolts of this article, I would like to introduce myself and explain why I am writing this series of articles. I am a mother of two boys, one of whom has Prader-Willi Syndrome. I also am a Board Certified Behavior Analyst. I currently work […]

read more

ROSE COLORED GLASSES

by Abigail Ogilbee Have you ever worn a great pair of sunglasses in the summer? The lake isn’t as blinding when the sun hits the waves, the trees are a little greener, and the world is a little more crisp. Take them off and the sun burns your eyes making you squint with pain. Elsa […]

read more

Meet Your Family Support Team

Kate Beaver, MSW, CSW-Family Support Counselor Because her daughter has Prader-Willi syndrome, Kate had first-hand knowledge of the challenges families encounter with the syndrome and had valuable personal experience in how to access services and support for her family prior to joining the PWSA (USA) staff. As a Crisis Intervention and Family Support Counselor, Kate’s […]

read more

Managing Behavior

One of the most difficult challenges parents face is managing their child’s behavior.  Whether it occurs at home, at school, or in a residential care setting, problematic behavior is one of the most frequent reasons parents and providers call PWSA (USA) for help. The first step to effectively manage behavior is to identify the problematic […]

read more

Grandparents: Make Philanthropy a Family Affair

Helping Your Grandchildren “Experience” Philanthropy How often do you hear that today’s generation of children are self-absorbed or one of entitlement? That’s a pretty harsh statement to make, and one that I don’t entirely agree with. I think kids today don’t just want things – they want experiences too! Children see the needs of the […]

read more

Family Thriving Despite Daughter’s Rare Chromosomal Disorder

GRAND FORKS, N.D. — As soon as those two lines appear on a pregnancy test, thoughts start pouring in: what will my child’s life be like? Will it be a boy or girl? Will they grow up to be an astronaut? Find the cure for cancer? What will it be like being new parents? Steph […]

read more
Showing 1 to 8 of 14 results
  TOP