PWSA Blog

Tell Your US Senator to Vote Against the Reconciliation for Prescription Drug Pricing Legislation

The Reconciliation for Prescription Drug Pricing Legislation could make it even more expensive for pharmaceutical companies to develop therapies for rare diseases! The reconciliation for prescription drug pricing legislation is putting cures at risk for patients and their families. The measure was proposed in an effort to lower out of pocket costs for millions of...

Participate in a PWS Specific Sleep Study

Has your 3–7-year-old child been diagnosed with Prader-Willi syndrome? Do they have trouble sleeping? You may be eligible to participate in a thesis study! If your child has a confirmed diagnosis of Prader-Willi syndrome, is awake at least once per night three nights of the week and has trouble going to bed at least three...

How to Develop Positive Relationships with Your School District

Navigating the special education process world can be intimidating, overwhelming, and sometimes downright scary for parents. Building a positive and collaborative relationship with the school district will benefit your student, you, and district officials. It's important to remember that there will be differences of opinions, mistakes, and difficult conversations throughout the school years. When you...

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