19

Feb

Sleep-Related Breathing Disorders in Young Adults With Prader-Willi Syndrome: A Placebo-Controlled, Crossover GH Trial

Erica Furo | Feb 19, 2020 | Comments Off on Sleep-Related Breathing Disorders in Young Adults With Prader-Willi Syndrome: A Placebo-Controlled, Crossover GH Trial

27

Sep

Halloween Fun

PWSA (USA) | Sep 27, 2019 | Comments Off on Halloween Fun

12

Sep

National Direct Support Professional Week

PWSA (USA) | Sep 12, 2019 | Comments Off on National Direct Support Professional Week

11

Sep

Recruitment: Acceptance and commitment training (ACT) for fathers of adolescents with PWS, a pilot study funded by the Foundation for Prader Willi Research

PWSA (USA) | Sep 11, 2019 | Comments Off on Recruitment: Acceptance and commitment training (ACT) for fathers of adolescents with PWS, a pilot study funded by the Foundation for Prader Willi Research

02

Aug

The Safety and Efficacy of Growth Hormone (GH) Treatment in Infants with PWS; Findings from Current Research

PWSA (USA) | Aug 02, 2019 | Comments Off on The Safety and Efficacy of Growth Hormone (GH) Treatment in Infants with PWS; Findings from Current Research

01

Aug

A Comprehensive Overview of GI Issues in Prader-Willi Syndrome

PWSA (USA) | Aug 01, 2019 | Comments Off on A Comprehensive Overview of GI Issues in Prader-Willi Syndrome

12

Jun

Why You Should Hire Someone with Prader-Willi Syndrome

Rikka Bos | Jun 12, 2019 | Comments Off on Why You Should Hire Someone with Prader-Willi Syndrome

07

Jun

Summer Fun

PWSA (USA) | Jun 07, 2019 | Comments Off on Summer Fun

31

May

Narcolepsy as a Characteristic of Prader-Willi Syndrome

PWSA (USA) | May 31, 2019 | Comments Off on Narcolepsy as a Characteristic of Prader-Willi Syndrome

30

May

Bringing Hope: A Mother’s Perspective

PWSA (USA) | May 30, 2019 | Comments Off on Bringing Hope: A Mother’s Perspective

29

May

A Grandparent’s Perspective

PWSA (USA) | May 29, 2019 | Comments Off on A Grandparent’s Perspective

28

May

A Sibling’s Perspective

PWSA (USA) | May 28, 2019 | Comments Off on A Sibling’s Perspective

21

May

PWS Awareness Month – Week 3

PWSA (USA) | May 21, 2019 | Comments Off on PWS Awareness Month – Week 3

18

May

Exercise and Behavior

PWSA (USA) | May 18, 2019 | Comments Off on Exercise and Behavior

17

May

PWS Awareness Month Week 2 Mini Blog – Positive Behavioral Support

PWSA (USA) | May 17, 2019 | Comments Off on PWS Awareness Month Week 2 Mini Blog – Positive Behavioral Support

16

May

PWS Awareness Month Week 2 Mini Blog – Oppositional Behavior

PWSA (USA) | May 16, 2019 | Comments Off on PWS Awareness Month Week 2 Mini Blog – Oppositional Behavior

15

May

PWS AWARENESS MONTH WEEK 2 MINI BLOG – Perseverating

PWSA (USA) | May 15, 2019 | Comments Off on PWS AWARENESS MONTH WEEK 2 MINI BLOG – Perseverating

14

May

PWS Awareness Month Week 2 Mini Blog – Managing an Outburst

PWSA (USA) | May 14, 2019 | Comments Off on PWS Awareness Month Week 2 Mini Blog – Managing an Outburst

12

May

PWS Awareness Month Week 2 Mini Blog – Behavioral Outbursts

PWSA (USA) | May 12, 2019 | Comments Off on PWS Awareness Month Week 2 Mini Blog – Behavioral Outbursts

08

May

Prader-Willi Syndrome Awareness Month

PWSA (USA) | May 08, 2019 | Comments Off on Prader-Willi Syndrome Awareness Month

06

May

PWS Awareness Month: Week 1

PWSA (USA) | May 06, 2019 | Comments Off on PWS Awareness Month: Week 1

23

Apr

NUTRITION and HEALTHY LIVING

PWSA (USA) | Apr 23, 2019 | Comments Off on NUTRITION and HEALTHY LIVING

08

Apr

Easter Fun

PWSA (USA) | Apr 08, 2019 | Comments Off on Easter Fun

03

Apr

Receiving the Diagnosis

PWSA (USA) | Apr 03, 2019 | Comments Off on Receiving the Diagnosis

13

Mar

Tips for Better Sleep

Rikka Bos | Mar 13, 2019 | Comments Off on Tips for Better Sleep

10

Dec

Tips and Techniques for a Safe Holiday Season

pwsa | Dec 10, 2018 | Comments Off on Tips and Techniques for a Safe Holiday Season

15

Nov

Applied Behavior Analysis and PWS Part 2: The A-B-C’s of Behavior

pwsa | Nov 15, 2018 | Comments Off on Applied Behavior Analysis and PWS Part 2: The A-B-C’s of Behavior

26

Oct

Event: Foundation for Prader-Willi Research Annual Research Symposium and Conference

Mary Burr | Oct 26, 2018 | Comments Off on Event: Foundation for Prader-Willi Research Annual Research Symposium and Conference

11

Oct

Halloween Fun for Everyone!

Stacy Ward | Oct 11, 2018 | Comments Off on Halloween Fun for Everyone!

03

Oct

INDIVIDUALLY WE ARE RARE…TOGETHER WE ARE STRONG: PARENT MENTOR PROGRAM 
STRENGTHENS PWS COMMUNITY

PWSA (USA) | Oct 03, 2018 | Comments Off on INDIVIDUALLY WE ARE RARE…TOGETHER WE ARE STRONG: PARENT MENTOR PROGRAM 
STRENGTHENS PWS COMMUNITY

03

Oct

APPLIED BEHAVIOR ANALYSIS AND PRADER-WILLI SYNDROME, PART 1: EXPLAINING ABA

PWSA (USA) | Oct 03, 2018 | Comments Off on APPLIED BEHAVIOR ANALYSIS AND PRADER-WILLI SYNDROME, PART 1: EXPLAINING ABA

03

Oct

ROSE COLORED GLASSES

PWSA (USA) | Oct 03, 2018 | Comments Off on ROSE COLORED GLASSES

31

Jul

Meet Your Family Support Team

PWSA (USA) | Jul 31, 2018 | Comments Off on Meet Your Family Support Team

25

Jul

Managing Behavior

pwsa | Jul 25, 2018 | Comments Off on Managing Behavior

09

Jul

Grandparents: Make Philanthropy a Family Affair

Diane Seely | Jul 09, 2018 | Comments Off on Grandparents: Make Philanthropy a Family Affair

18

May

Recording of Recent Webinar: How Patients Can Partner to Speed Treatments for PWS, co-presented by FPWR and PWSA-USA, is now Available

pwsa | May 18, 2018 | Comments Off on Recording of Recent Webinar: How Patients Can Partner to Speed Treatments for PWS, co-presented by FPWR and PWSA-USA, is now Available

09

May

A Mother’s Day Gift

pwsa | May 09, 2018 | Comments Off on A Mother’s Day Gift

10

Apr

Advocating for your child in the ER

pwsa | Apr 10, 2018 | Comments Off on Advocating for your child in the ER

22

Mar

Summary Of Active Clinical Trials For Prader-Willi Syndrome Hyperphagia

pwsa | Mar 22, 2018 | Comments Off on Summary Of Active Clinical Trials For Prader-Willi Syndrome Hyperphagia

05

Mar

Family Thriving Despite Daughter’s Rare Chromosomal Disorder

pwsa | Mar 05, 2018 | Comments Off on Family Thriving Despite Daughter’s Rare Chromosomal Disorder

05

Feb

Convention Connections: One Mother Shares How the PWSA (USA) Convention Helped Her and Her Family

pwsa | Feb 05, 2018 | Comments Off on Convention Connections: One Mother Shares How the PWSA (USA) Convention Helped Her and Her Family

13

Nov

Cousins at Christmas: Opening the Conversation of Your Child’s Special Needs

pwsa | Nov 13, 2017 | Comments Off on Cousins at Christmas: Opening the Conversation of Your Child’s Special Needs

18

Jul

He’s Still Henry- Our Prader-Willi Syndrome Story

pwsa | Jul 18, 2017 | Comments Off on He’s Still Henry- Our Prader-Willi Syndrome Story

29

Jun

Diagnoses and characteristics of autism spectrum disorders in children with Prader-Willi syndrome

pwsa | Jun 29, 2017 | Comments Off on Diagnoses and characteristics of autism spectrum disorders in children with Prader-Willi syndrome

15

Jun

Who’s Harder To Raise Boys or Girls?

pwsa | Jun 15, 2017 | Comments Off on Who’s Harder To Raise Boys or Girls?

08

Jun

Grandparents of Prader-Willi Syndrome Children

pwsa | Jun 08, 2017 | Comments Off on Grandparents of Prader-Willi Syndrome Children

25

May

TOO DARN HOT!

pwsa | May 25, 2017 | Comments Off on TOO DARN HOT!

08

May

Grayson’s Story

pwsa | May 08, 2017 | Comments Off on Grayson’s Story

20

Jan

The Night we told Ryan he has Prader-Willi Syndrome

pwsa | Jan 20, 2017 | Comments Off on The Night we told Ryan he has Prader-Willi Syndrome

21

Oct

A Dad’s Love

pwsa | Oct 21, 2016 | Comments Off on A Dad’s Love

16

Sep

“Kicking The Can” with PWS

pwsa | Sep 16, 2016 | Comments Off on “Kicking The Can” with PWS

09

Sep

The Confusing World of Growth Hormone Insurance Coverage and Denials

pwsa | Sep 09, 2016 | Comments Off on The Confusing World of Growth Hormone Insurance Coverage and Denials

29

Jul

Weathering the Storm – A Mother’s Story

pwsa | Jul 29, 2016 | Comments Off on Weathering the Storm – A Mother’s Story