PWSA Blog

My Sister Linda

Linda was the oldest, born in 1951 in New York City. Prader-Willi syndrome wasn’t discovered until 1956. My parents noticed Linda would go to the refrigerator often and that she was a bit short for her age. We moved to San Diego in 1961. Linda loved playing tennis, swimming, and eating out. She especially loved...

Donor Spotlight: Michelle Spring

PWSA | USA is special because of YOU, our donors, who passionately give to support our mission. It is because of your generous gifts that we can provide help and hope through family support, advocacy, and research efforts. To celebrate and honor your generosity, each month we will spotlight a donor and their story showcasing...

In the Brain’s Cerebellum, a New Target for Suppressing Hunger

Peer-Reviewed Publication | UNIVERSITY OF PENNSYLVANIA A research team led by the University of Pennsylvania's J. Nicholas Betley has identified an entirely new way the brain signals fullness after eating. The findings offer a novel target for therapies that could dramatically curb overeating. People with Prader-Willi syndrome, a genetic disorder, have an insatiable appetite. They...

National Adoption Day: Michael’s Story

After almost ten years of attempting to become parents via fertility treatments, failed foster care adoption committees and even an adoption facilitator scam, we learned about a very special little two-month-old baby boy named Baby M, who had been diagnosed with Prader Willi Syndrome, through Special Angels Adoption Agency. He had been born at Yale...

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