PWSA Blog

Dr. Moris Angulo, MD Opens New Clinic in New York

We are pleased to announce that Dr. Moris Angulo M.D. has opened a new clinic, located in Bablyon, NY, and is accepting patients. Location: Center for Pediatric Specialty Care, 655 Deer Park Avenue, Babylon, NY 11702 To schedule an appointment, call 631-321-2100 ——————————————– Moris A. Angulo, M.D., was born in El Salvador, Central América and...

Jacob’s Story

Jacob’s Story, as told by his mom, Teri: “Jacob is my 25 year old son with UPD PWS. Thankfully PWSA has been there for us since Jacob was born. We have definitely had challenges over the years. Those teenage years were filled with behaviors so we tried an ISL (independent supported living) in Kansas City,...

Pioneers in Advocacy for Special Education

Many students with PWS and parents have faced many challenges over the years in educating and advocating for their right to a free and appropriate education.  PWSA l USA staff have spent many hours developing handouts, participating in Individual Education Planning meetings and assisting families in addressing other educational concerns.  In 2015, The Special Education...

Hunter’s Story: Our Happy Boy!

Hunter’s Story, as told by his mom, Nicolette: “I am mom to Hunter who is almost 2 years old. We have made it through many ups and many downs over the last almost 2 years. When Hunter was born he spent 43 days in 2 different NICUs. He was born at a hospital that thankfully...

Noelle’s Story

When we initially received Noelle’s diagnosis, we grieved the loss of all the typical long-term dreams that we had for our only daughter and acknowledged that we were going to need to live our lives differently. We then decided that PWS would not define her or our family. Certainly there are parts of our lives...

PWSA | USA Expands Capacity to Serve With Transition of the Prader-Willi Care Coordination Program from The Children’s Institute of Pittsburgh

FOR IMMEDIATE RELEASE Contact: Paige Rivard, CEO Prader-Willi Syndrome Association USA (PWSA | USA) privard@pwsausa.org / 941-487-6724   Prader-Willi Syndrome Association | USA Expands Capacity to Serve With Transition of the Prader-Willi Care Coordination Program from The Children’s Institute of Pittsburgh (May 19, 2021- Sarasota, FL) PWSA | USA, a national nonprofit organization with a...

#HopeIsHere – Ethan and Mason

Thinking back to NICU, and being told “I don’t know what’s wrong with your baby. But something is, and it’s pretty serious.” I never ever thought we’d get to the point where we could could just live our lives casually. Casually cuddling on the couch. Casually packing up and heading out for a walk. Casually...

Scroll to top