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September 2020

PWSA of Ohio Adult ISP’s webinar

September 24 @ 7:00 pm - 8:30 pm

Thursday September 24th Time:  7-8:30PM Topic: PWSA of Ohio Webinar #6 – Adult ISP’s and writing them to advocate for your adult child Join Zoom Meeting https://us02web.zoom.us/j/86762258788 Meeting ID: 867 6225 8788 One tap mobile +19292056099,,86762258788# US (New York) +13017158592,,86762258788# US (Germantown)

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Prader-Willi syndrome and Sleep Disorders webinar

September 26 @ 11:00 am - 1:00 pm

Prader-Willi syndrome and Sleep Disorders Saturday, September 26, 2020 from 11:00 AM to 1:00 PM Eastern Moderated by Maria Picone, Founder/CEO of TREND Community, with expert panelists from Texas Children's Hospital and Harmony Biosciences and featuring two teens with PWS as guest speakers. Join us for this comprehensive and collaborative live webinar to better understand how sleep issues may be related to the symptoms of Prader-Willi syndrome. Narcolepsy and cataplexy, excessive daytime sleepiness, apnea, and other sleep issues will be…

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PWSA of WI’s Annual Golf Benefit

September 27

27 Sep 2020 from 9:00 AM - 3:00 PM The Oaks Golf Course 4740 Pierceville Rd Cottage Grove, Wisconsin 53527 More information coming soon!

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Behavior Management Training SoCal

September 27

Behavior Management Training SoCal September 27 @ September 27 - September 27 Yes, behavioral change IS possible! Parents, Extended Family, Babysitters, and Professionals will learn specific strategies to reduce or even eliminate some of the most challenging PWS behaviors including: Arguing and Verbal Aggression Oppositional and Defiant Behavior Temper Tantrums and Physical Aggression Food-Related Behaviors Repeated Questions and Perseveration Skin Picking and Other Excoriation Behaviors This training is packed with strategies you need now. Of course the earlier you begin to implement PWS-specific behavior management strategies…

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Developing Your Child’s Middle School IEP webinar

September 28 @ 7:00 pm - 8:00 pm

Title Developing Your Child's Middle School IEP Date Monday, September 28, 2020 Time 7:00 PM Eastern Speaker Amy McDougall, M.S. Description During this live webinar, Amy will discuss the mandated elements of an Individual Education Plan and outline guiding questions to ensure that your child's individual needs, particularly those related to PWS, are addressed as you work in collaboration with your district to develop your child’s middle school IEP. Registration https://attendee.gotowebinar.com/register/1154581077172596752

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October 2020

Five in Fifteen PWSA | USA Federal Public Policy Webinar Series – Part 2

October 5 @ 12:00 pm - October 9 @ 12:30 pm

Title: Access to Genetic Counselor Services Act of 2019 (H.R. 3235) Date: Monday, October 5 Time: 12:00-12:15 PM Eastern Description: Learn more about how H.R. 3235 will allow Medicaid and Medicare beneficiaries to be seen by genetic counselors, ensuring that they receive the benefits of the rapidly advancing field of medical genetics in a timely, cost-effective, and professional manner. Registration: https://us02web.zoom.us/meeting/register/tZIpduiqpj8oE9TYqxPyiVVbk8fHbkQXYtv_ Title: Advancing Access to Precision Medicine Act (H.R. 4393) Date: Tuesday, October 6, 2020 Time: 12:00-12:15 PM Eastern Description:…

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Developing Your Child’s High School IEP

October 5 @ 7:00 pm - 8:00 pm

Title Developing Your Child's High School IEP Date Monday, October 5, 2020 Time 7:00 PM Eastern Speaker Amy McDougall, M.S. Description During this live webinar, Amy will discuss the mandated elements of an Individual Education Plan and outline guiding questions to ensure that your child's individual needs, particularly those related to PWS, are addressed as you work in collaboration with your district to develop your child’s high school IEP. Registration https://attendee.gotowebinar.com/register/1757958973635639824

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PWSA of Ohio Family Day Camp

October 10

PWSA of Ohio Family Day Camp Join us at Recreation Unlimited for a day of fun activities SATURDAY, OCTOBER 10, 2020 from 9 am to 6 pm Registration Start at 9:00 Lunch and Dinner provided RSVP BY OCTOBER 1, 2020 Questions: e-mail joyetodd@gmail.com http://pwsaohio.org/wp-content/uploads/2020/09/2020-Family-Camp-Day-Flyer-Registration-Form-A.pdf

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2nd Annual Sparkle and Shine Gala

October 17 @ 5:00 pm - 9:00 pm

17 Oct 2020 from 5:00 PM - 9:00 PM Red Circle Inn and Bistro More information coming soon!

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November 2020

TXPWA DFW Family Support Group Meeting

November 14 @ 10:00 am - 12:00 pm

DALLAS/Ft. WORTH Support Group Meeting Dates The TXPWA DFW Family Support Group Meeting is Saturday, August 8, 2020 VIRTUAL MEETING 10AM-NOON Virtual Meeting! Join us to connect with your PWS neighbors and take a short break during this summer. Zoom Meeting ID:822 4445 4805, Password: 888888, questions? email Richard: richardabc@gmail.com or text 650-281-1749. "See" you there! 2020 meeting dates:  August 8 and November 14,  2020, 10:00 A.M. - 12:00 P.M. Curis Functional Health If you are interested in attending the family support group,…

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Austin/San Antonio Virtual Family Support Group Meeting

November 21 @ 11:00 am - 1:00 pm

Austin/SA Family Support Meeting Dates The TXPWA Austin/San Antonio Family Support Group Meeting. Saturday, August 15, 2020 VIRTUAL MEETING 11 AM-1 PM Zoom Meeting ID: 85264039356; Password: 464877 . "See" you there! Questions: aggiearcaya@yahoo.com; 512.844.7077 Join us to connect with your PWS neighbors and take a short break during this time of uncertainty. For Zoom meeting ID, email aggiearcaya@yahoo.com or text 512-844-7077. "See" you there! 2020 meeting dates:  August 15 and November 21, 2020, 11:00 A.M. - 1:00 P.M. Mary Lee…

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San Diego PWS Support Group Meeting

November 22 @ 1:00 pm - 3:30 pm

San Diego PWS Support Group Meeting November 22 Dates: All 2020 meetings are on Saturdays from 1:00 p.m. to 3:30 p.m. February 22, May 17, August 23, November 22 Place: PWCF Office 1855 First Ave Suite 201 San Diego, CA 92101   *Childcare is not provided for this support group meeting. RSVP: Call the PWCF Office 310-372-5053 or 800-400-9994 (toll free)

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