September 2023
ECHO 4 PWS – Endocrinology 101
Register TODAY for PWSA | USA's next Healthcare Provider Project ECHO Series webinar, Endocrinology 101, which will be held Tuesday, September 26, 2023 at 6:00 p.m. EST. We are proud to offer this FREE opportunity to healthcare professionals who work with patients affected by Prader-Willi syndrome (PWS) or are interested in learning more about PWS, and to be the first PWS organization to implement Project ECHO in the United States. Endocrinology 101 will be presented by Jennifer Miller, MD, Professor of Pediatric Endocrinology,…
Find out more »October 2023
2nd Annual No Gimmies for Jimmy
2ND ANNUAL NO GIMMES FOR JIMMY CHARITY GOLF OUTING OCTOBER 6, 2023- 8AM CHECK-IN, 9AM SHOT-GUN START NO GIMMES FOR JIMMY 2ND ANNUAL CHARITY GOLF OUTING IN LOVING MEMORY OF JIM WORTHINGTON A PWSA EVENT IN SUPPORT OF PRADER-WILLI SYNDROME JOIN US FOR A DAY ON THE LINKS IN REMEMBRANCE OF JIM WORTHINGTON. A PORTION OF THE PROCEEDS WILL BE DONATED TO THE PRADER-WILLI SYNDROME ASSOCIATION (“PWSA”), IN JIM’S NAME. TO REGISTER AS A GOLFER, CLICK HERE: HTTPS://NOGIMMESFORJIMMY.RSVPIFY.COM/
Find out more »14th Annual Hunter Lens Golf Tournament
14TH ANNUAL HUNTER LENS GOLF TOURNAMENT OCTOBER 7, 2023 THE BACK NINE CLUB 17 HERITAGE HILL DR, LAKEVILLE, MA 02347 About Hunter Hunter is 24 years old and has Prader-Willi syndrome. He leads a happy, active life despite his daily challenges. He has friends, a loving family and his weight is under control. Supporting PWSA | USA, a non-profit, will open more doors for Hunter and others who live with PWS, which ultimately means a better life. Hunter deserves a…
Find out more »2023 Mom’s Retreat
When: October 12-15, 2023 Where: Palm Springs, California PWSA | USA is excited to host our first-ever Mom's Retreat in October 2023. We will welcome 30 PWS moms and full-time female caregivers to the Omni Rancho Las Palmas Resort & Spa in Palm Springs, CA. The Moms' Retreat application is now available and is due by August 14, 2023. Mom's Retreat attendees will be selected through a randomized lottery on August 18, 2023. CLICK HERE TO LEARN MORE AND TO…
Find out more »3rd Annual Answers for Audrey
What: (Trivia) Answers for Audrey Where: Incarnate Word Academy 2788 Normandy Avenue St. Louis, MO 63121 When: Saturday October 21, 2023 CLICK HERE TO LEARN MORE
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Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.