Project Echo for PWS

ECHO 4 PWS: Cardiac Concerns

When: Monday, September 30, 2024 at 5:00 PM EST

Where: Virtual/Zoom Video
This series is for healthcare providers only

PWSA | USA's - ECHO 4 PWS Healthcare Provider Series

PWSA | USA launched our new Healthcare Provider Project ECHO Series, ECHO 4 PWS, in 2023. We are proud to offer this opportunity to healthcare professionals who work with patients affected by Prader-Willi syndrome (PWS) and to be the first PWS organization to implement Project ECHO® in the United States.

Our next healthcare ECHO topic will focus on Cardiac Concerns presented by Dr. James Loker, followed by a 20-minute case study on PWS. On September 30, 2024, at 5:00 p.m. EST, Dr. Loker will discuss Cardiac disease, which accounts for 16% of all deaths in PWS. He will share the unique features of PWS that may predispose them to cardiovascular problems.

PWSA | USA’s Healthcare Provider Project ECHO Series will touch on a wide range of healthcare topics in the PWS space and will be available for all health professionals across our network including (but not limited to): Geneticists, Pediatric Endocrinologists, Neonatologists, Nurses, Pediatricians, Endocrinologists, Psychiatrists, Psychologists, Social Workers, Occupational Therapists, Pulmonologists, Orthopedic Surgeons, Dieticians, Physiotherapists, Speech and Language Therapists, Medical Students and Professional Caregivers.

While this ECHO series is only for healthcare providers to attend, recordings of the webinars are available for our PWS families to view HERE.

Scroll below to find more ECHO 4 PWS webinar opportunities.

Speaker

Jim Loker, MD, Clinical Professor, Department of Pediatric and Adolescent Medicine, Western Michigan University

James Loker, MD, has been a pediatric cardiologist for over 25 years. He enjoys all aspects of pediatric cardiology but is particularly interested in Kawasaki disease and children with special needs. His daughter Anna, with Prader-Willi syndrome, has shaped his life and practice. Along with his wife, they have been active in Prader-Willi syndrome on both the state and national level. He is a member of the Clinical & Scientific Advisory Board for Prader -Willi Syndrome Association | USA. He has contributed to multiple medical publications on Prader-Willi syndrome and helped organize the Medical Alert booklet. He is a member of state committees on sudden death in the young, and newborn screening for congenital heart disease. Dr. Loker sits on the National Advisory Board for Congenital Heart program at the University of Michigan. He enjoys going on medical mission trips to Africa to treat congenital heart disease. In his free time, he enjoys boating and scuba diving.

Upcoming ECHO 4 PWS Webinars

ECHO 4 PWS Webinar: Exercise Physiology

November 11, 2024, at 5:00 p.m. EST

Join PWSA | USA for our November ECHO 4 PWS Webinar, Exercise Physiology with Dr. Daniela Rubin on Monday, November 11, 2024 at 2:00 p.m. PST / 5:00 p.m. EST.  More details coming soon!

LEarn More about PWS Research

A Parent’s Perspective on their Child’s Clinical Trial

A Parent’s Perspective on their Child’s Clinical Trial

contributed by Susan Fries, mom to Roselyn, 7-year-old living with PWS “I feel like we are all waiting for that magic fix, and if it works for someone else then my kid must drink the kool-aid and it’ll work for them too. But we deep down know it doesn’t work that way as much as […]

The Screening Appointment

The Screening Appointment

contributed by Anne Fricke The intention of this series is to shed light on the process of enrolling and participating in a clinical trial, as well as to create a space to openly share the many emotions that are involved when a family decides whether or not to join. Part of the decision-making process should […]

How We Got Here

How We Got Here

contributed by Anne Fricke I lay awake in a pre-dawn haze the morning Freya was to take her first pill. We had been to Southern California twice already, a combination of 7 flights up and down the coastline, numerous hours of travel, and far too many airport meals, and I was still momentarily on the […]

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