ANNOUNCEMENT:  Board of Directors Announcement of Executive Director Departure


The Board of Directors of Prader-Willi Syndrome Association (USA) announces the departure of Ken Smith as Executive Director of PWSA (USA), effective December 4, 2017. Ken has served our Association as a member of the Board of Directors and Executive Director for over two decades and served the Prader-Willi community at-large through his connection with The Children’s Institute in Pittsburgh. His dedication to our families and our mission over the years is greatly appreciated. Most of us owe Ken a debt of gratitude for Saving and Transforming our own individual PWS family. We all wish Ken the best as he embarks on the next chapter of his career.
The task of the executive director position will be handled by Steve Queior as Acting Executive Director. Steve joined our team in March as the Director of Fund Development and has excelled in that position, including taking additional responsibilities. Please direct all Executive Director level communications to Steve ( We have complete confidence that PWSA (USA) is in good hands while we move forward in our search for a permanent Executive Director.
For over 40 years, PWSA (USA) is the only organization in the world that provides the truly unique combination of services to our families. Our Five Pillars of Support: awareness, family support, research, education and advocacy serve as the base for Saving and Transforming lives and will continue to grow and mature in the coming years.
We are proud of our history as a leader in the PWS community, with a high percentage of donated funds going towards our mission and not administrative costs. We ask that you work with us during this transitional period and we look forward to the future as we continue in Saving and Transforming Lives!
Yours truly,
Michelle Torbert
Chair, Board of Directors
Prader-Willi Syndrome Association (USA)


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