We are here to help! We are committed to ensuring that newly diagnosed families have the most up to date research material, educational literature, counseling, nutrition, and medical information all within our Package of Hope which we have been providing to families for well over a decade. Click the icon above to learn more.


Donate today to help PWSA (USA) provide life saving research, crisis/medical support, family support and newly diagnosed/new parent support. We have been Saving and Transforming Lives since 1975. Click the icon above to donate!


Welcome! PWSA (USA) membership is more than just a membership, it’s a community. Members strengthen the mission of PWSA (USA) by providing important funding for our family support and research efforts. Click the icon above to learn more.


There are many ways you can get involved in helping the Prader-Willi Syndrome Association (USA) locally and globally. With our many On The Move Walks and online fundraisers such as eWalk, we have something available for everyone. We welcome you into our amazing community! Let’s Save and Transform Lives together! Click the icon above to learn more.

Register Today For PWSA (USA)'s 34th National Convention!

With the biggest names and the hottest topics, this is something everyone will be talking about. Join the many families and individuals that are part of the PWS community this year in Orlando, FL from November 16th – 18th!

Click Here to learn more about how to submit Abstracts for the 2017 Medical & Scientific Conferences.




Oxytocin Initiative: A Phase 2 Study in Prader-Willi Syndrome

TREND and PWSA (USA) are excited to support Drs. Jennifer Miller and Dan Driscoll in their endeavor to gain FDA approval to make oxytocin a standard of care for Prader-Willi syndrome (PWS).

Get Your Copy of Diehards on Amazon

The author is donating 50 percent of the proceeds from his book “Diehards” to PWSA (USA)

Survey: Vascular Blood Clots, Deep Vein Thrombosis (DVT) and/or Thrombosis in Prader-Willi Syndrome

We would like all parents or caregivers of children and adults with PWS ofall ages, living or deceased to fill out this survey