PWSA Blog

PWSA | USA’s Family Support Program Offers Help + Hope!

PWSA | USA's 2022 Family Support Campaign begins June 1, 2022 and will last through July 31, 2022

At all ages and stages, PWSA | USA’s Family Support team is always here to offer HELP + HOPE.

From your first days in the NICU, to your loved one’s school IEP, food-seeking and behavioral needs, guardianship, and residential referrals, we are responding to your evolving challenges and needs 24 hours a day, 7 days a week, 365 days a year. PWSA | USA’s Family Support team provides the encouragement, support, and resources individuals and families need to thrive in the face of a rare genetic condition.

June 1st through July 31, 2022, you can support PWSA | USA in the multiple ways we give HELP + HOPE to our families through our three pillars (Family Support, Advocacy and Awareness, and Research). During these two months, we will share new resources for our PWS community, including:

  • Social stories to help your loved one living with PWS navigate different social experiences
  • A webpage dedicated to guide families in the NICU after receiving their child's PWS diagnosis
  • A webpage that will offer healing, hope, and acceptance for those in need of any type of grief support
  • Personal stories from families and our Family Support team
  • And so much more!

Be on the lookout for our Family Support Campaign Hub and these new tools to help assist your family on your PWS journey. We will send out weekly emails with new resources each week. If you are not signed up to receive PWSA | USA emails, you can find our newsletter form HERE.

Thank you for your support!

 

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