Upcoming Advocacy Events

PWSA | USA's Advocacy Guide

For more information on how to be an effective advocate download this advocacy toolkit created by Patients Rising with our Community Engagement Specialist, Dorothea Lantz, as a contributing member

Download Toolkit

Watch the video below and meet some of PWSA | USA’s advocates

PWS State Qualifier Campaign

We are excited to share that several new community members are in the beginning stages of having PWS added to their state's list of developmental disabilities. Currently, there are advocates in Ohio and Arizona working to make PWS a qualifying condition, and additional advocates in Georgia, Maryland, North Carolina, Oregon, California, Hawaii, Illinois, Washington and Missouri who are starting the process. Way to go, Advocates! If you or someone you know is interested in leading the charge in your state, please email PWSA | USA at Advocacy@pwsausa.org.


Click the link below to download the comprehensive joint response from PWSA | USA and FPWR. We will continue to keep you informed of any developments as we move forward in this process together

Click here to download the report.

Watch PWSA | USA's Advocacy in Action Webinar Series Recordings Below

Visit our Advocacy in Action YouTube Playlist here