PWSA | USA Introduces Twenty-Four Hour Family Support

For Immediate Release

PWSA | USA Introduces Twenty-Four Hour Family Support

[Sarasota, Florida, October 30, 2020] Prader-Willi Syndrome Association | USA (PWSA | USA) announced today it will begin providing 24-hour Family Support services to individuals and families in the Prader-Willi syndrome (PWS) community.

“The past year has been challenging for everyone, and this is especially true for families affected by PWS. In addition to the struggles our community faces on any given day, the global pandemic has brought heightened health and safety concerns, isolation and loneliness, and disrupted routines and schedules,” said PWSA | USA CEO, Paige Rivard. “Our organization has experienced a significant increase in requests for help as families learn to navigate a “new normal” and in response we are introducing 24-hour Family Support services.”

Through the end of 2020, families will have round the clock emergency access to information and support for urgent medical and behavior management situations. Emergency support services begin today and will be available to the community by calling 800.926.4797. The extended services will be provided by PWSA | USA's knowledgeable and friendly Family Support team.

“We are incredibly thankful to our donors whose generosity make this critical service possible for the PWS community,” continued Rivard. “We know our families need extra support during these uncertain times and we are honored to be here for them.”

If you have any questions about PWSA | USA’s 24-hour Family Support services, please contact the organization at

About Prader-Willi Syndrome Association | USA

Prader‐Willi Syndrome Association | USA is an organization of families and professionals working together to raise awareness, provide support, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

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