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Resource Index
By Type:
Booklets
- The Child with PWS: Birth to Three
- Medical Reference Guide for Parents
- Growth Hormone Booklet: Third Edition
- NICU: When Your Baby is in the Hospital
- Nutrition Guidelines: Infants & Toddlers
- Grandparents eBooklet
- Medical Alerts Booklet
- Therapeutic Interventions
- Six-Month Update Booklet
- Management of Prader-Willi Syndrome: Fourth Edition (available for purchase)
- Transition Planning
- Nutrition Guidelines: Adolescence through Adults
Brochures
- Helping All Families and Professionals
- Q&A About PWS
- Supporting Someone with PWS
- Management of PWS in Work Settings
- What Educators Should Know
- Advice for School Professionals from People with PWS
- Speech and Language and PWS
- Someone You Know Has PWS
- Medical Overview for Professionals
- PWSA | USA Family Support Brochure
Cards
Fact Sheets
- PWS Infant Fact Sheet
- PWS Toddler Fact Sheet
- PWS School Age and Young Adult Fact Sheet
- PWS Adult Fact Sheet
By Topic:
Behavior Management
- Behavior and the Collaborative Problem-Solving
- Follow the Principles of Food Security
- Behavior Management Guidelines
- How Does a Person with PWS Think?
- Preventing Challenging Behavior
- Tips for Dealing with Running/Elopement Behavior
- Weight and Behavior Management
- When is Stealing NOT a Crime?
- Write it, Share it, Post it, and Use it: Tips for Creating a Positive Behavioral Plan
- Strength in Boundaries - IPWSO
- Coping with Change - IPWSO
- Applied Behavior Analysis
- Applied Behavior Analysis and PWS: Parts One and Two
- PWS Infant Fact Sheet
- PWS Toddler Fact Sheet
- PWS School Age and Young Adult Fact Sheet
- PWS Adult Fact Sheet

Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.