PWSA Blog

Recognizing Sleep-Related Symptoms of PWS

World Narcolepsy Day is recognized each year on September 22nd. Narcolepsy is a chronic neurological condition that impairs the brain’s ability to regulate the sleep-wake cycle. It affects about one in 2,000 people. Continued research suggests that children and adults with PWS experience sleep disorders including chronic insomnia and narcolepsy with cataplexy to a greater extent than the general population.

To learn more about narcolepsy, watch the 2021 Convention panel presentation below, which was moderated by Maria Picone, Co-Founder and CEO of TREND Community, with expert panelist Dr. Glaze of Texas Children’s Hospital and featuring Kristi and Justice Rickenbach, a family navigating life with narcolepsy, cataplexy, and PWS.

Don't forget to register for PWSA | USA's Virtual Sleep Summit - Tuesday, September 27, 2022!

The Sleep Summit will be held on Tuesday, September 27, 2022 from 11:30 a.m. EST - 8:00 p.m. EST, and will include several webinar presentations from top specialists who are experts in sleep issues. This Summit is for both parents and healthcare providers.

During the FREE virtual event, you will learn about the genetics of sleep and sleep disorders in PWS, how to manage sleep disorders for those affected by PWS, and so much more!

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