Recognizing Sleep Related Symptoms of PWS

World Narcolepsy Day is recognized each year on September 22nd. Narcolepsy is a chronic neurological condition that impairs the brain’s ability to regulate the sleep-wake cycle. It affects about one in 2,000 people. Continued research suggests that children and adults with PWS experience sleep disorders including chronic insomnia and narcolepsy with cataplexy to a greater extent than the general population.

To learn more about narcolepsy, watch the 2021 Convention panel presentation below, which was moderated by Maria Picone, Co-Founder and CEO of TREND Community, with expert panelist Dr. Glaze of Texas Children’s Hospital and featuring Kristi and Justice Rickenbach, a family navigating life with narcolepsy, cataplexy, and PWS.


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