D.C. Fly-In 2024

PWSA | USA is excited to announce that our 2nd D.C. Fly-In will take place May 13-15, 2024, and the event hotel will be YOTEL Washington DC | Capitol Hill Hotel (415 New Jersey Ave NW, Washington, DC 20001)! During the Fly-In, we will learn about Policy affecting the PWS community, hear from policy makers, and continue our advocacy efforts by coming together on May 15th for a “Day on the Hill” to celebrate National PWS Awareness Day! We want to thank Aardvark Therapeutics, Acadia Pharmaceuticals, Harmony Biosciences, and Soleno Therapeutics for funding this important event for our community.

Download the official 2024 D.C. Fly-In press release announcement at the button below.

Important D.C. Fly-In Update

We have reached our capacity for 2024 D.C. Fly-In applications. We are thrilled to see the overwhelming interest in this event and look forward to taking our advocacy efforts to Washington, D.C. in May! Attendee selections have been made on a first-come, first-served basis. Thank you all for your incredible enthusiasm and understanding.

If you have any questions, please reach out to us at advocacy@pwsausa.org.

D.C. Fly-In Grant Funding Provided By

2024 D.C. Fly-In Hill Day Asks

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2024 D.C. Fly-In Helpful Documents

2024 D.C. Fly-In Agenda

2024 D.C. Fly-In FAQs

Who can attend the D.C. Fly-In?

If you live in the United States and need or receive services for PWS, you should join.

What will our "asks" be to policymakers?

We will have three specific "asks" for elected officials and their staffers when we attend the Congressional meetings on May 15th. We will ask elected officials to sign on to and support the following initiatives: Promising Pathway Act (PPA) 2.0, Peer Reviewed Medical Research Program (PRMRP), and a Congressional Letter of Support for PWS to the U.S. Food and Drug Administration. Scroll above to find more details about these three asks.

What am I responsible for paying for?

Everyone who attends the D.C. Fly-In is responsible for purchasing their own plane ticket(s) and scheduling their flight(s). PWSA | USA will cover our attendees' rooms at the YOTEL Washington DC for three nights (May 13-15), However, if you choose to have your own room (no roommate) or need a room to yourself because you are bringing additional family members, you will be required to pay a $150 per night surcharge. After your application is submitted, PWSA | USA will reach out with next steps.
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