PWSA (USA) welcomes its first official Corporate Partner; Prader-Willi Homes of Oconomowoc, at the PWSA (USA) Board of Directors meeting on September 14th. A premier residential facility located in Dousman, Wisconsin, Prader-Willi Homes of Oconomowoc has been supporting individuals with PWS and their families for over 35 years.
PWSA (USA) works with Corporate Partners to coordinate the efforts of PWSA (USA) and corporate leaders, in a collaborative environment, to advance the field of Prader-Willi Syndrome research, patient care, and family support. Positive recognition and other benefits are provided at three different levels of partnership. Both PWSA (USA) and Corporate Partners benefit from the relationship, as each assists the other in achieving its mission.
To learn more about becoming a Corporate Partner, contact Steve Queior at 941-487-6730 or squeior@pwsausa.org.
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New board member and National Director of Admissions and Advocacy for Prader-Willi Homes of Oconomowoc, Marguerite Rupnow, presents check to PWSA (USA) board chair Jim Kane.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.