The following is a review by Suzanne B. Cassidy, M.D., a world renowned PWS genetic specialist, editor of Management of Common Genetic Syndromes, and President of the International Prader-Willi Syndrome Organisation:
“A wonderful, eminently readable book about the impact, challenges and successes of living with and understanding Prader-Willi syndrome. Most impressive from my point of view, as a clinician and researcher who has observed and participated in the progress in our knowledge of Prader-Willi syndrome for more than three decades, is how clear and accessible are his descriptions of the scientific and medical progress it has undergone. Written with an audience of families and direct caregivers in mind, it is nonetheless scientifically accurate.
This is a book that can be a source of knowledge and inspiration for everyone who lives with or studies Prader-Willi syndrome, whether a parent or sibling, a care provider, a teacher, a doctor, or a scientist.“
John Hernandez -Storr has very generously offered to donate all of the proceeds for books sold through PWSA (USA) back to the Association.