PWSA | USA is built on the dedication of families, caregivers, and supporters who believe in advancing care, advocacy, and resources for individuals with Prader-Willi syndrome. In addition to lived experience, the organization relies on professional expertise to remain strong, sustainable, and forward-thinking.
This is an opportunity not only for parents and caregivers, but also for extended family members, friends, and professional allies who want to support the mission in a meaningful way. If you’ve ever wondered how your skills could make a difference beyond a donation, this is a powerful way to contribute.
PWSA | USA welcomes individuals who are willing to share their expertise in the following areas:
– Communications & Media
– Financial Expertise
– Fund Development
– Human Resources (generalist)
– Legal Expertise
– Philanthropy
– Website / Digital Expertise
Volunteering your professional skills helps strengthen the organization’s infrastructure and allows PWSA | USA to better serve families nationwide. Contributions of time and talent — whether ongoing or project-based — play a vital role in advancing this important work.
If you, or someone you know, has experience in any of these areas and is interested in learning more, please contact Stacy Ward, CEO, at info@pwsausa.org and type “I have a skill” in the subject line.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.