We are excited to offer a special webinar Thursday, August 26, 2021 at 8:00 p.m. EST on becoming an advocate for PWSA | USA.
Advocacy is not just for lobbyists: Anybody can be an effective advocate. Join PWSA | USA and learn how you can help bring PWS awareness to states throughout the country. At PWSA | USA we understand that State and Federal government’s both play a unique and irreplaceable role in supporting these efforts. Join our team of advocates and learn how you can help!
__________________________________________________________________________________________
Dorothea Lantz
Dorothea Lantz is the Community Engagement Specialist for PWSA | USA, a licensed Real Estate Broker with ONE Sotheby’s International Realty and a lifetime resident of Miami, Florida. In July of 2017, she and her husband and were blessed with their son, Hunter, who was diagnosed with PWS at 16 days old. Dorothea has an extensive background in public service, government administration and is a contributing member of the South Florida and PWS community. She has been a Parent Mentor with PWSA | USA since 2019. In addition, Dorothea is an appointed member of the City of South Miami Environmental Review and Preservation Board and a Mentor with the ACE Foundation Women's Leadership Institute.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.