Hello from the PRETEND/Telehealth team at Case Western Reserve University! We are excited to say that we are gearing up for another enrollment trip for our ongoing studies on Prader-Willi syndrome, this time in San Antonio, TX. We will be there from Wednesday March 8 through Saturday March 11.We are recruiting families with children with PWS 3-11 years of age, for assessment of emotional, cognitive, and social abilities, and the opportunity to enroll in a 6-week play-based remote intervention program to improve skills in these areas.
If you are interested in participating please complete the following link: https://cwru.az1.qualtrics.com/SE/?SID=SV_b7nq4ecv2fwCOUt, and/or reach out to our Research Associate, Ellen Doernberg, at
216-368-0112, or via email a firstname.lastname@example.org.
Thank you so much and we hope to hear from you soon!
The PRETEND/Telehealh Team
Profiling of the gut microbiome in children with PWS
The human gut contains bacteria that play an important role in food digestion. When the stomach and small intestine are unable to digest certain foods, gut microbes ensure nutrients are digested. Changes in gut microbes may lead to obesity, but the specific role of gut microbes in weight control in Prader-Willi Syndrome (PWS) and childhood obesity is not yet fully understood. In our study, we will compare the gut microbial composition of children with PWS to individuals of similar age, gender and body weight who do not have PWS.
Our objective is to explore the gut microbiome in children with PWS compared to children without PWS.
What will participants be asked to do?
Children will come to the University of Alberta, Canada, for one study visit for about an hour and a half. Before they come, we will send children and their parents more information about the study. If parents agree to have their child participate they will sign a consent form. Children will sign an assent form if they also agree to participate. During the study visit we will:
Who can participate in this study?
Who can’t participate in this study?
For more information about the study, please contact Lucila Triador, Research Assistant, at email@example.com
(PWSA (USA) is providing sponsorship for both grants.)