Today, as we work together to ensure that every member of our Prader-Willi syndrome community has access to the support, expertise, and resources needed to help our loved ones thrive, we need your help! Whether you have just begun your PWS journey or are well along your way, join us to help ensure PWSA | USAโs responsive and ever-evolving services and resources are always available to all. Each day, across the country and around the world, new families join our community and are in need of the assistance that only our Family Support team can provide.
PWSA | USAโs Family Support team GETS you! We are in your corner to be the light of hope as you begin your journey, the expertise at your IEP meeting, the experienced voice answering your late-night call from the ER, the counselor helping you address behavior concerns, the advocate helping you plan for your loved oneโs next transition, and so much more. Every day, PWSA | USAโs Family Support team is standing by to provide an experienced ear and the most relevant tools and resources to provide support to your family, every step of the way.
Your donation, no matter the size, plants a seed of HOPE for all PWS families in their darkest moments to ensure each and every member of our community has access to the life-saving expertise and resources the Family Support team is known for. When you join other members of our community and make a tax-deductible donation to our Family Support Campaign (now through May 31st!), YOUR IMPACT WILL BE DOUBLED (up to our first $20,000) thanks to a match from a generous PWS parent.
Thank you for helping to sustain this singular resource to provide customized support for the PWS community 24 hours a day/7 days a week/365 days a year!
P.S. We are counting on you to help us raise funds to sustain this critical resource. Do you want to do more to help us reach our goal? Join our Family Support Challenge by creating your own fundraising page at hopeunited.pwsausa.org/FSC23.
Perry A. Zirkel has written more than 1,500 publications on variousย aspects of school law, with an emphasis on legal issues in special education.ย He writes a regular column for NAESPโsย Principalย magazine and NASPโsย Communiquรฉย newsletter, and he did so previously forย Phi Delta Kappanย andย Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Childrenโs Institute of Pittsburgh. She graduated fromย Duquesne University receiving her Bachelorโs and Masterโs degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Programย (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Childrenโs Hospital in Denverย supporting families and school districts around the United Statesย with their childโs Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.