At all ages and stages, PWSA | USA’s Family Support team is always here to offer HELP + HOPE.

From your first days in the NICU, to your loved one’s school IEP, food-seeking and behavioral needs, guardianship, and residential referrals, we are responding to your evolving challenges and needs 24 hours a day, 7 days a week, 365 days a year. PWSA | USA’s Family Support team provides the encouragement, support, and resources individuals and families need to thrive in the face of a rare genetic condition.

June 1st through July 31, 2022, you can support PWSA | USA in the multiple ways we give HELP + HOPE to our families through our three pillars (Family Support, Advocacy and Awareness, and Research).

Your gift to the Family Support Campaign today, means our vital resources will be available in the future for your family, and those who have yet to get their life-changing diagnosis. Together, we can continue to strengthen and grow, and fulfill PWSA | USA’s mission of enhancing the quality of life and empowering those affected by Prader-Willi syndrome. To make your gift, simply fill out the form below.

Family Support Spotlight

"I would like to send a huge thank you to everyone at the Family Support team. The last couple of years have been extremely stressful. My child is really struggling with behavior issues and stealing food. We've had deputies at our house a half dozen times, we've had to call and she has called them on us as well.  She's been admitted to three different hospitals and had multiple extended stays at behavior treatment facilities. Always the result of stealing food, she's done plenty of damage in the house and it's certainly taken a toll on all of us.  

Whenever it was too much to handle, I could always count on PWSA | USA to help us through it.  Just knowing there was someone who knows what we're going through and is willing to listen, has given me the strength to persist. Doctors, nurses, deputies, family, friends, etc. simply can't relate to what we're going through. They all mean well, but nothing can compare to another parent who's been there, done that. The Family Support team has shown incredible patience as I railed and swore and said things I should never say, and they always made me feel like there is hope, and we will get through this episode.  

It takes really special people to be there for those that are exhausted, embarrassed, ashamed, and feeling like the worst parent in the world.  PWS is hard on everyone, and I'm grateful there are people like those on the Family Support team who pick us up and let us know we're not alone. Keep up the great work!! My family appreciates all of you!" 

- Anonymous

How Does Family Support Offer Help + Hope?

Watch the videos below to hear how our families and individuals affected by PWS receive support

Weekly Social Stories

Throughout the Family Support Campaign, we are launching new Social Stories each week for our community to use! These Social Stories are learning tools specifically designed for individuals living with PWS across all ages, races, genders, and abilities. They can be used to help your loved one navigate different social situations and build social and emotional skills.

Click on the buttons below to download our first social story, which provides an exercise your loved one can use when they feel upset. You will also find a blank version of this social story, allowing you to add in your own images, be it through printed pictures or drawings! 

Click on the buttons below to download our second social story, which provides an exercise your loved one can use when they want to play with others. You will also find a blank version of this social story, allowing you to add in your own images, be it through printed pictures or drawings! 

Click on the buttons below to download our third social story, which provides an exercise your loved one can use when other individuals are not being nice to them. You will also find a blank version of this social story, allowing you to add in your own images, be it through printed pictures or drawings! 

Click on the buttons below to download our fourth social story, which provides an exercise your loved one can use to help them make good choices. You will also find a blank version of this social story, allowing you to add in your own images, be it through printed pictures or drawings! 

Click on the buttons below to download our fifth social story, which provides an exercise your loved one can use to help them make good choices. You will also find a blank version of this social story, allowing you to add in your own images, be it through printed pictures or drawings! 

Click on the buttons below to download our sixth social story, which provides an exercise your loved one can use to help them brush their teeth. You will also find a blank version of this social story, allowing you to add in your own images, be it through printed pictures or drawings! 

Click on the buttons below to download our seventh social story, which provides an exercise your loved one can use to help them get ready to go to sleep. You will also find a blank version of this social story, allowing you to add in your own images, be it through printed pictures or drawings! 

Click on the buttons below to download our eighth social story, which provides an exercise your loved one can use to help them calm down when they are feeling frustrated. You will also find a blank version of this social story, allowing you to add in your own images, be it through printed pictures or drawings! 

Stay Hydrated in Style with PWSA | USA’s Hope United Water Bottles!

Here's how you can get yours:

1. Go to store.ZagFundraising.com
2. Enter the PWSA | USA Seller ID: 98913778
3. Click the SHOP button
4. Email family and friends the shopping link, store.ZagFundraising.com, and the Seller ID. Don't forget to share on Social Media!
5. Orders will have a nominal shipping fee and orders over $150.00 will receive free shipping!
6. Orders will be received in approximately three business days from the order date

Your purchase of these Hope United water bottles through July 31st supports PWSA | USA's Family Support Campaign!