contributed by Anne Fricke
Last year around this time, Freya climbed Mount Lassen (a 10,000+ foot volcano in Northern California). This year, her class went on another adventure, a backpacking trip to Mount Eddy. The mountain was a little smaller, but the camping trip was more challenging. Freya handled it all like a champ!
This was her first backpacking trip. We drove away from our school on the coast and parked at 6,800 feet. Being from sea level, the adjustment to the altitude takes a bit. We didn’t have time to adjust before having to pull on our backpacks and hike 3 miles in, with a 600-foot elevation gain, to camp. We set up our tents by a beautiful lake and enjoyed a lovely evening.
The next morning, we gathered some essentials (mostly snacks and water) and hiked up to the top of Mount Eddy at 9,025 feet. This was a 5-mile round trip hike that included about a mile each way of switch backs on rocky slopes. Freya fell a time or two but got right back up and kept on climbing!
She spent that afternoon wading into the lake, catching the frogs that live nearby, and playing several rounds of hide-and-seek tag with her classmates. The next day, with legs tired and sore from the climb, Freya managed to sling on her still-heavy backpack and hike the 3 miles out in only 1.5 hours. She fell a few times and again, got right back up and kept on hiking.
Almost every day this summer, Freya began her days with a 1 mile walk and closed out the evening with another 1-mile walk. Now that school has started, she makes time for a 10-minute walk on the treadmill before she goes off to school. She wants to participate in what her peers are doing, even though it’s not always easy for her. (Unless they are being loud and chaotic and she is overstimulated, then she is happy to sit quietly by the lake with her mom and simply enjoy the view.) While on this trip, Freya’s teacher and I spoke about just how incredibly determined Freya is with everything. She is up for the challenge and pushes herself to do all the things that she knows she can!
I am so grateful that Freya goes to a school that challenges and encourages her, where the teachers seem to know the right amount of softness and grit to help Freya participate in every activity her school mates do (except the biking field trips, but that’s a story for another day). I am grateful that for the second time I have been there to watch Freya climb a literal mountain, knowing all of the metaphorical ones she continues to climb.
Next year’s adventure is a multi-day backpacking trip along the Lost Coast of Northern California, where the camp is packed every morning, and we hike on to a new scenic adventure. I’ll keep you posted.
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Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.