PWSA Blog

Shine a Light on Rare Disease Day!

Monday, February 28, 2022 is Rare Disease Day and we are asking YOU, our PWS community, to help shine a light on this important day! There are many ways we can come together even if we don’t do so physically. Being part of a global chain of lights in recognition of Rare Disease Day is one example. You can be part of it by helping to light up monuments and buildings near you in Rare Disease Day colors (blue, green, pink and purple). You can even light your own home in these colors and encourage your friends and neighbors to do the same!

PWSA | USA has already received confirmation that The Bob Kerrey Pedestrian Bridge in Omaha, Nebraska will light up in recognition of Rare Disease Day on February 28th!

AND The Lowry Avenue Bridge in Minnesota will light up in Pink, Blue, Purple and Green on February 28th as well!

Our ask to the PWS community is if you receive approval from a landmark in your area, or if you simply light up your home in Rare Disease Day colors, please share a picture with us at communications@pwsausa.org. Through this effort, we can show the world just how important Rare Disease Day is to our community.

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