More Ways To Get Involved

Send an email or letter to your lawmakers

Letter/Email template for informing your legislators about Prader-Willi syndrome and Rare Disease Day

As Prader-Willi syndrome is considered a “rare disease,” extra effort is needed to bring attention to the needs of the PWS community. Use this letter/email template to contact your lawmakers about PWS.

Visit our Public Policy Action Center

Visit our Public Policy Action Center and connect with your local senators and representatives to help bring awareness to the needs of individuals with PWS and their families.