It has been said that each of us needs just three things to be truly happy in this world: someone to LOVE, something to HOPE for, and something to DO. Together with our Prader-Willi syndrome community near and far, our mission requires all three.
WE LOVE: They are our children, our grandchildren, nieces, nephews, aunts, uncles, neighbors, patients, and friends living with the obstacles that come with this rare and complex diagnosis of PWS.
WE HOPE: We unite in hope to transform those efforts into opportunities for our loved one that leads to a life filled with possibility. We move forward each day with positivity and determination because we know with certainty that our loved one with PWS has a bright future ahead, despite the challenges they face.
WE DO so much from the moment our loved one with PWS enters the world…
This holiday season, we invite you to share your HOPE for your loved one with PWS (or the PWS community) when you fill out our online donation form. Why? Because your message of hope will become part of a thread of hope connecting all of us near and far as we begin a new year.
Additionally, we’d like to ask for your support with a year-end contribution to help ensure we can continue TAKING ACTION for all those affected by PWS. Whether it’s raising our voices with legislators in Washington, D.C. about issues that matter most, helping to navigate through a medical emergency, or providing family support as you appeal for benefits—we are by your side every step of the way!