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Recording of Recent Webinar: How Patients Can Partner to Speed Treatments for PWS, co-presented by FPWR and PWSA-USA, is now Available

 

The recent webinar: How Patients Can Partner to Speed Treatments for PWS, co-presented by FPWR and PWSA-USA, is now available. This webinar provides important information about PWS clinical trials including: what to expect when participating in a clinical trial, what questions you should ask, and how to get the information you need to decide if a clinical trial is right for your loved one with PWS. The webinar also reviews current and upcoming PWS trials.

Several valuable resources were shared during the webinar and are listed below:

PWSA-USA: Active Clinical Trials of PWS Hyperphagia: compares 5 PWS clinical trials for hyperphagia using information collected from the sponsoring companies.  Information provided includes company name, phase, type of study, administration, eligibility criteria and more.

FPWR: PWS Clinical Trials in Progress and Starting Soon: provides a high level view of current PWS drug and intervention studies with age eligibility, trial sites, BMI requirements, etc., as well as links to more information on each trial. Information is updated regularly to ensure data is up-to-date and reliable.

Global PWS Registry: the Registry provides critical support for PWS clinical trials. If you have a loved one with PWS, we invite you to enroll in the registry and update your surveys annually.

ClinicalTrials.gov: a database of privately and publicly funded clinical studies conducted around the world. Includes detailed trial information including eligibility criteria, trial design and trial sites.

 

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