PWSA Blog

Recognizing Resiliency: PWSA Chapters in Action

While some organizations have scrambled to figure out how to continue their daily operations during the coronavirus pandemic, PWSA Chapters across the country are leading the way with unique virtual event experiences. Here are some original ideas that PWSA Chapters have been doing to keep the PWS community connected virtually:

 

  • The Prader-Willi Syndrome Association of Ohio has been hosting a series of webinars covering a variety of social services questions – including adult Individual Support Plans, adult housing options, waivers, guardianship, and eligibility for DD services.

 

  • Prader-Willi California Foundation (PWCF) and Texas Prader-Willi Association (TXPWA) hosted a series of virtual chat groups for families in California and Texas. These online support groups have been a great way to encourage families of individuals with PWS to connect with and learn from other families.

 

  • The Minnesota Prader-Willi Syndrome Association was able to make a successful transition from their annual in-person golf tournament to a virtual fundraiser on short notice when the coronavirus pandemic hit earlier this spring. They are still hoping to be able to host an upcoming family farm picnic this fall.

 

  • The Prader-Willi Syndrome Association of New England, in partnership with Latham Centers, has been hosting virtual social hours for young adults with PWS. Students with PWS (under 22 years old) have been able to connect and have fun together, meeting new friends and playing games.

 

PWSA Chapters around the country have strong leaders, are well organized, and have continued to offer stellar programs and services despite the coronavirus pandemic bringing many organizations to a halt.

 

As such, the PWSA | USA Chapter Relations Committee is excited to recognize Chapter leaders for their dedication to enhancing the quality of life of and empowering those affected by Prader-Willi syndrome (PWS) with an Outstanding Chapter Award ceremony. The Outstanding Chapter Awards will recognize the important role of Chapters and honor Chapters whose service positively impacts the PWS community in their state or region.

 

For more information about the Outstanding Chapter Awards, please contact Andrea Lucy at alucy@pwsausa.org

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