Registration is NOW OPEN for PWSA | USA’s 37th National Convention! We invite you to join us June 21 – June 24, 2023, in sunny Orlando, Florida at the Hilton Orlando Buena Vista Palace.
PWSA | USA’s Convention will provide exciting opportunities to learn, connect (and reconnect), and hear about the latest PWS research. This amazing event will include Medical & Scientific, Professional Provider, and Family Conferences. We are also honored to host an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting, which is an FDA program.
Whether you have a loved one with PWS, are a professional provider, a physician, or scientist, the 2023 Convention has something for everyone. Register TODAY by clicking the button below. We hope to see you there!
Get excited, because we are putting a fun twist on our 2023 National Convention Gala event! Attendees are invited to join us for the Hope United Gala, which will take place the evening of Friday, June 23, 2023 from 6:00 - 9:30 p.m. EST. Bring your best singing voice because our special entertainment will be performed by “Fun Pianos,” with their amazing Dueling Pianos for Prader-Willi syndrome.
Attendees will enjoy a buffet-style dinner and drinks, and will have the chance to bid on amazing items in our silent and live auctions. Purchase Hope United Gala tickets at the button below, and learn about our Night Under the Stars Gala event for your loved one's living with PWS and their siblings on the Convention Summary page.
PWSA | USA is welcoming Abstract submissions for a presentation of recent research, related scientific or medical topics on the subject of Prader-Willi syndrome for our 2023 Medical & Scientific Conference. The Medical & Scientific Conference will be held at PWSA | USA's 37th National Convention June 21-22, 2023 in Orlando, FL. The deadline to submit an Abstract is January 31, 2023. Click on the links below to get started!
Abstract Submission Guidelines
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.