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Please Participate in Research on PWS Caregiver Stress

I would like to invite you to participate in a research study on the ‘Relationship between caring for individuals diagnosed with Prader-Willi syndrome (PWS) and caregiver stress’. The results will provide vital information to caregivers, service providers, and policy makers on strategies and supports needed in the care of individuals with PWS.

The survey will take approximately 30 minutes to complete. If you leave the survey without completing it and decide to come back later, you will need to start from the beginning. Because of the time commitment, all participants will have the opportunity to enter a drawing for a chance to receive one of eight $25 Amazon gift cards. To assure anonymity of your responses, at the end of this survey you will be directed to a separate survey form to enter the drawing. This ensures that there is no connection between your survey responses and your contact information.

Below are the requirements to be part of this study:

– are at least 18 years old,
– a family member of an individual diagnosed with PWS (i.e. parent, step-parent, sibling, grandparent, etc.)
– the individual being cared for is at least four years of age,
– the individual is not living in a supported living environment (i.e. supervised group home or supervised apartment).

By right clicking on the link below and opening it, you are agreeing to participate in this research study.

http://survey.az1.qualtrics.com/SE/?SID=SV_eCEbma2boaBbYTb

This study has been reviewed by The University of Mississippi’s Institutional Review Board (IRB). If you have any questions, concerns, or reports regarding your rights as a participant of research, please contact the IRB at (662) 915-7482 or irb@olemiss.edu.

Thank you,

Michael A. Vice
Doctoral Candidate, Health Behavior and Promotion
Department of Health, Exercise Science and Recreation Management
The University of Mississippi
Turner Center 234
662-832-0817
mavice@go.olemiss.edu

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