Mattyofit’s Miami Endurance Run: 100 Miles/24 Hours
My name is Matheus Oliveira and I’m running in this year’s Miami Ultra 100 Marathon on Saturday, September 25th! I’m not just running for me….. I’m running for my sister, Ana Beatriz. Ana Beatriz is 16 and has struggled with Prader-Willi syndrome all of her life. Watching how hard she needs to work to do things that my body can do so easily is gut-wrenching. As I prepare for this high endurance challenge of running 100 miles in 24 hours, my sister’s life-long struggles have inspired me each step of the way. In the final weeks of my training and preparation, I’d like to use my visibility in the fitness world and coaching industry to raise awareness and much needed funds to ensure that individuals with PWS and their families can have the support and resources they need.
Any donation counts and is very appreciated! A donation of $100 or more (just $1/mile!) and Matty will personally hook you up with a free month of online coaching!
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.