PWSA | USA is excited to announce that thanks to the dedication and hard work of our Advocacy Ambassador, Dr. Erin Carter-Cooper, PhD, Ohio Representative Rose Sweeney (D - District 16) and Representative Gayle Mannin (R – District 52) have jointly filed legislation that will make Prader-Willi syndrome a recognized developmental disability in the State of Ohio!
House Bill 337 was introduced earlier this month and has already garnered support from both sides of the aisle. With 11 co-sponsors already signed on, this is the 2nd state this year that has introduced legislation to support our PWS community. Advocates like Erin are making a difference and moving the needle throughout the country.
Read the full House Bill 337 language and follow the bill's approval process at https://www.legislature.ohio.gov/legislation/135/hb337. If you or someone you know is interested in getting involved, please email Dorothea at Advocacy@pwsausa.org for more information.
Watch the video below to hear from Erin as she explains the first steps she took to get PWS added to Ohio's list of developmental disabilities.