Join PWSA | USA’s Advocacy Committee!

The PWSA | USA Advocacy Committee is opening spots for NEW MEMBERS to join. The purpose of the PWSA | USA Advocacy Committee is to advise and educate the PWS Community on public policy issues related to PWS and the rare disease community. In addition, the committee is responsible for providing policy direction in the association’s advocacy efforts on both the federal and state level, and to provide leadership to PWS Advocates throughout the country. The committee meets on the 2nd Wednesday of every month at 2PM EST. Committee members should anticipate giving an average of two-three hours per month to complete the activities.

If you would like to be considered, please click the button below to fill out a volunteer application and email your request to Dorothea Lantz at

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