submitted by Sarah Kasaby, mom to Khaled (living with PWS)
This weekend’s United We Brunch was more than I could have imagined — full of warmth, support, connection, and purpose. Thank you to everyone who came out, asked questions, donated, shared, and simply showed up with open hearts. 💛
As we gathered around delicious and healthy homemade dishes (yes, the hummus and tahini were a hit! 😉), we shared stories, laughter, and tears. I opened up about our family’s journey — how we found out about the diagnosis, what it meant, and how it’s shaped our lives ever since. We talked about the incredible advocacy work that PWSA | USA is doing, and the international outreach we’re involved in through PWSA, bringing families and professionals together from all over the world.
One of the most moving parts of the day was seeing the connection among families. Two PWS families joined us at our special table — one mom drove over an hour with her 1-year-old son, and another generously shared her experience raising her 15-year-old. ❤️
Our conversations stretched beyond PWS. Families shared our story with others they know facing different challenges, and we had meaningful discussions about IEPs, 504 plans, and navigating special education. I was so happy a dear friend of mine — a special ed teacher — joined the conversation and offered great insights. And one moment that truly touched my heart: my son’s OT, who’s been walking this journey alongside us for quite some time, came to show his support. His love and commitment to my son are so deeply appreciated and having him there meant the world. 🧡
Thank you again to everyone who made this day so special. Your support helps raise awareness and hope for families like ours, and reminds us that together, we’re never alone.
Visit Sarah and Khaled’s fundraising page using the button below.
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