Events and Fundraisers
Thank you to everyone who attended this year's Virtual National Convention! Session Recordings are NOW AVAILABLE. Click here to watch.
Reserve your stay TODAY at Compass by Margaritaville, Anna Maria Island, FL *Limited number of rooms available
Latest News
2021 Convention Gear and New PWSA | USA Swag Now Available!
The 2021 PWSA | USA Online Convention Store is now open for business! We are excited to offer a wide variety of gear to kick-off this year’s National Convention. The Convention Store offers mugs, t-shirts, hoodies, a plush Panda stuffed animal, picture frames, coasters, infant onesies, and so much more! PLUS – We have launched...
Dr. Moris Angulo, MD Opens New Clinic in New York
We are pleased to announce that Dr. Moris Angulo M.D. has opened a new clinic, located in Bablyon, NY, and is accepting patients. Location: Center for Pediatric Specialty Care, 655 Deer Park Avenue, Babylon, NY 11702 To schedule an appointment, call 631-321-2100 ——————————————– Moris A. Angulo, M.D., was born in El Salvador, Central América and...
FPWR and PWSA|USA Request Regulatory Flexibility & Review of NDA for Intranasal Carbetocin
We request the flexibility afforded to other orphan indications when considering whether applications for treatments for PWS should be accepted for review. In a continuation of our joint advocacy efforts supporting the full review of potential drugs for PWS, FPWR and PWSA | USA have submitted a petition letter to the FDA requesting that they...