Noelle’s Story
When we initially received Noelle’s diagnosis, we grieved the loss of all the typical long-term dreams that we had for our only daughter and acknowledged that we were going to need to live our lives differently. We then decided that PWS would not define her or our family. Certainly there are parts of our lives...
PWSA | USA Expands Capacity to Serve With Transition of the Prader-Willi Care Coordination Program from The Children’s Institute of Pittsburgh
FOR IMMEDIATE RELEASE Contact: Paige Rivard, CEO Prader-Willi Syndrome Association USA (PWSA | USA) privard@pwsausa.org / 941-487-6724 Prader-Willi Syndrome Association | USA Expands Capacity to Serve With Transition of the Prader-Willi Care Coordination Program from The Children’s Institute of Pittsburgh (May 19, 2021- Sarasota, FL) PWSA | USA, a national nonprofit organization with a...
Teacher Appreciation Week
Teacher Appreciation Week Would you be where you are today, without the teachers in your life who encouraged, inspired and believed in you? I know I would not be. I considered being a teacher – who does not love the idea of getting out of work by three every day and having summers off? What...
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.