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Latest News
Ask Nurse Lynn: Supportive Grandparents
Question: Male, 11, Deletion My grandson has behavioral issues, and we try to help as much as possible when he is over. He is on medication, but his behavior seems worse at times. For instance, when he gets mad because he can’t get what he wants, especially in a store, will sit down and cry...
Invitation to Participate in Prader-Willi Syndrome Awareness Initiative
Additional Details from Soleno Therapeutics: Dear Members of the PWS Community, We are so grateful for your response to our recent letter requesting photos for an upcoming opportunity to raise awareness and understanding for the PWS community in Times Square on PWS Awareness Day. The number of beautiful photos and notes we’ve received has been...
Supporting Siblings
Contributed by Anne Fricke The quotes in this blog come from the transcript of an NPR Talk of the Nation broadcast, “Siblings with Special Needs Change Childhood”, that aired on Sept. 25, 2012. Don Meyer, the person quoted, is the founder of the Sibling Support Project. As the parent of a child with PWS, I...