Events and Fundraisers
Thank you to everyone who attended this year's Virtual National Convention! Session Recordings are NOW AVAILABLE. Click here to watch.
Reserve your stay TODAY at Compass by Margaritaville, Anna Maria Island, FL *Limited number of rooms available
Latest News
Nominations Now Being Accepted for PWSA | USA’s 2023 Volunteer Awards
Help us honor our PWSA | USA volunteers! Do you know someone who deserves to be recognized for their service and dedication to PWSA | USA's mission and the PWS community? 2023 Volunteer Appreciation Award nominations are now being accepted through Sunday, April 30, 2023. PWSA | USA will give out six awards this year:...
Convention Spotlight: Julie Casey
We are excited to come together again in-person for the 37th PWSA | USA National Convention, June 21-24, 2023 in Orlando, FL! Leading up to this much-anticipated event, members of our PWS community are sharing their Convention memories and why it’s beneficial for others to attend! Below, PWS parent Julie Casey gives details about her...
Sharing Our Rare: Sheri & Lyra
Rare Disease Day, which falls on February 28th each year, helps shine a light on the roughly 7,000 recognized rare diseases. To assist in this effort, we have been asking our community to tell us how you "share your rare" for Prader-Willi syndrome. One unique and impactful way we have heard from families is how...