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2024 Walk a Mile in their Genes Advocacy Campaign

We can continue to make our voices and our stories heard through advocacy and community outreach. Beginning January 16, 2024, YOU can sign up for PWSA | USA’s 2nd annual “Walk a Mile in their Genes” advocacy campaign. Participants will not only raise awareness about PWS, but they will raise much needed funds to enable […]

PWS Rare Aware Art Share: Theme 1 Submissions

Between February 1 - March 15, 2024, we are collecting artwork for Theme 1, PWS Awareness. Create your artwork using the prompt: “What is your superpower? What are you capable of?” People with Prader-Willi syndrome are capable of so many wonderful things. We want to know what you, the artist, are most proud of. What […]

2024 Clint Hurdle Hot Stove Dinner

2024 Clint Hurdle Hot Stove Dinner Tickets Now Available for Purchase! Join hosts Clint and Karla Hurdle on Saturday, March 23, 2024, on the beautiful grounds of Bradenton Country Club (4646 9th Ave W, Bradenton, FL 34209) in Bradenton, FL, and virtually from anywhere. Together, we can create a brighter future through your continued support! […]

2024 D.C. Fly-In

Washington, D.C.

2024 D.C. Fly-In application now available! Soar to new advocacy heights in Washington, D.C.! We are excited to announce the application to attend PWSA | USA’s 2nd D.C. Fly-In, which will take place May 13 – 15, 2024, is now available. Find important disclaimer information by scrolling below, including what expenses PWSA | USA will be […]

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