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X-WR-CALNAME:Prader-Willi Syndrome Association | USA
X-ORIGINAL-URL:https://www.pwsausa.org
X-WR-CALDESC:Events for Prader-Willi Syndrome Association | USA
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DTSTART;VALUE=DATE:20260601
DTEND;VALUE=DATE:20260701
DTSTAMP:20260608T074146
CREATED:20260511T135715Z
LAST-MODIFIED:20260511T135715Z
UID:67174-1780272000-1782863999@www.pwsausa.org
SUMMARY:Move for PWS
DESCRIPTION:This June\, Cisco employees are lacing up their sneakers\, hopping on their bikes\, and diving into the water to raise vital funds and awareness for Prader-Willi Syndrome Association | USA (PWSA | USA). From challenging bike marathons and invigorating lake swims to community 5Ks\, scenic hikes\, and adventurous kayaking trips\, our teams are pushing their limits throughout the month to honor loved ones impacted by Prader Willi Syndrome.  \nPrader-Willi Syndrome is a complex genetic disorder that affects many aspects of a person’s life\, and PWSA | USA plays a crucial role in providing support\, resources\, and advocacy for individuals with PWS and their families. Your donation\, no matter the size\, will directly contribute to their essential work\, funding research\, educational programs\, and community initiatives. Please join us in this inspiring effort and help make a significant difference in the lives of those affected by PWS. Thank you for your generous support! We are especially proud that four Cisco families are directly impacted by PWS\, and they are incredibly grateful for the continuous support from our compassionate community. \nCLICK HERE TO LEARN MORE & SUPPORT MOVE FOR PWS
URL:https://www.pwsausa.org/event/move-for-pws/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260620T063000
DTEND;TZID=America/New_York:20260620T063000
DTSTAMP:20260608T074146
CREATED:20260408T204035Z
LAST-MODIFIED:20260408T204114Z
UID:66746-1781937000-1781937000@www.pwsausa.org
SUMMARY:Counting Blessings in Miles Fundraiser
DESCRIPTION:What: Counting Blessings in Miles – Amy Maust Runs the Charlevoix 1/2 Marathon\nWhen:  June 20\, 2026\nWhere: Charlevoix\, Michigan \nClick Here to Donate to “Counting Blessings in Miles” \nA message from Amy Maust: \n“I’m running for Prader-Willi Syndrome Association USA to ensure that all PWS families have the support\, advocacy\, research\, and resources needed to help individuals with PWS thrive. Working at PWSA | USA\, helps me appreciate my health\, as I see others who are affected (directly or indirectly by PWS). The work we do at PWSA is a blessing for families affected by PWS. I decided to run the Charlevoix Half marathon in order to ‘count my blessings in miles’ as a way to bring awareness and raise money for PWS. Each mile I train\, I will post my “grateful list” and donate. I hope others will join me in helping the lives of those with PWS.” \n 
URL:https://www.pwsausa.org/event/counting-blessings-in-miles-fundraiser/
CATEGORIES:Michigan
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260715T180000
DTEND;TZID=America/New_York:20260715T180000
DTSTAMP:20260608T074146
CREATED:20260514T152147Z
LAST-MODIFIED:20260514T152147Z
UID:67237-1784138400-1784138400@www.pwsausa.org
SUMMARY:Dancing Through the Decades
DESCRIPTION:Join host Katie Martinez\, mom to Samuel (9\, living with PWS) for a fun\, high-energy night of music\, dancing\, and great memories as we move through different decades of music — spending time with friends\, family\, and community\, letting loose\, and being part of something meaningful. \nWhen: Wednesday\, July 15\, 2026 | Doors open at 6:00 PM\nWhere: Red Stick Social (1503 Government St\, Baton Rouge\, LA 70802) \nAll proceeds support the PWSA | USA\, which provides vital resources\, support\, advocacy\, and research for individuals and families affected by Prader-Willi Syndrome (PWS) — a rare genetic disorder that affects appetite\, growth\, metabolism\, and development. Individuals with PWS experience a constant feeling of hunger due to the body’s inability to regulate appetite\, along with a range of medical and behavioral challenges that require lifelong care and support. \nThis event is held in celebration of my son Samuel\, who lives with PWS and — like so many others in the PWS community — brings incredible joy\, strength\, and light into the world. He is made of sunshine! Every step we take together helps move us closer to better understanding\, stronger support\, and a brighter future for Samuel and the entire PWS community. \nWhile Dancing Through the Decades is an adults-only event\, we warmly welcome PWS families with younger children. We know how rare it can be for these families to enjoy a night out together\, and this event is for them — every family deserves a chance to celebrate and feel supported. \nCome dance through the decades with us — not only to celebrate the past\, but to help create that brighter future. \nCLICK HERE TO REGISTER AND TO LEARN MORE
URL:https://www.pwsausa.org/event/dancing-through-the-decades/
LOCATION:Red Stick Social\, 1503 Government St\, Baton Rouge\, LA\, 70802\, United States
CATEGORIES:Louisiana
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260724
DTEND;VALUE=DATE:20260727
DTSTAMP:20260608T074146
CREATED:20260511T211443Z
LAST-MODIFIED:20260511T211443Z
UID:67204-1784851200-1785110399@www.pwsausa.org
SUMMARY:2026 DADventure
DESCRIPTION:A Retreat for Dads of Children Living with Prader-Willi Syndrome \nWhen: Friday\, July 24 – Sunday\, July 26\, 2026\nWhere: Sandia Resort and Casino | Albuquerque\, New Mexico \nCLICK HERE TO LEARN MORE & REGISTER TO ATTEND \nDADventure is a father-led\, independently organized retreat created by Jonathan Andrews and Matt Rivard. This event is a grassroots initiative built specifically to create space for dads of children with Prader-Willi Syndrome to connect. \n“The idea for DADventure began when Matt Rivard and I found ourselves sitting at a bar\, drinking a beer and talking about the unique experience of being dads of children with Prader-Willi Syndrome. We recognized the need for a dedicated space where fathers could come together\, build meaningful connections\, and find strength in shared experience. This retreat was created to foster that community — one grounded in authenticity\, camaraderie\, and mutual support.”  – Jonathan Andrews
URL:https://www.pwsausa.org/event/2026-dadventure/
LOCATION:Sandia Resort and Casino\, 30 Rainbow Rd\, Albuquerque\, NM\, 87113\, United States
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260821
DTEND;VALUE=DATE:20260823
DTSTAMP:20260608T074146
CREATED:20251106T202301Z
LAST-MODIFIED:20260203T162216Z
UID:62952-1787270400-1787443199@www.pwsausa.org
SUMMARY:2026 Residential Providers Conference
DESCRIPTION:Registration is NOW OPEN! Residential Providers are invited to join PWSA | USA for the 2026 Residential Providers Conference – an unforgettable gathering dedicated to enhancing care\, sharing insights\, and strengthening community among residential providers in the PWS space.\n\n\n \n\n\n August 21–22\, 2026\n\n\n The Kimpton Brice Hotel | Savannah\, GA\n\n\n \n\n\nFor the second time\, we’re bringing together residential professionals from across the country to learn from colleagues and field experts\, exchange best practices\, and build collective expertise to improve outcomes for individuals living with Prader-Willi syndrome.\n\n\n \n\n\nThis conference is exclusively for residential providers and offers a unique opportunity to connect\, collaborate\, and grow alongside peers who understand the vital work you do every day.\n\n\n \n\n\nYou can register\, find the link to our room block\, and learn more at https://www.pwsausa.org/residentialprovidersconference/.
URL:https://www.pwsausa.org/event/2026-residential-providers-conference/
LOCATION:Kimpton Brice Hotel\, 601 E Bay St\, Savannah\, GA\, 31401\, United States
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DTSTART;TZID=America/New_York:20260919T130000
DTEND;TZID=America/New_York:20260919T130000
DTSTAMP:20260608T074146
CREATED:20260511T142512Z
LAST-MODIFIED:20260511T142547Z
UID:67182-1789822800-1789822800@www.pwsausa.org
SUMMARY:17th Annual Hunter Lens Golf Tournament
DESCRIPTION:Join the Lens family for a day of golf\, good spirits\, and great friends as you golf and dine at Heritage Hills Golf Club in Lakeville\, MA. This event is celebrating its 17th year raising critical funding for PWSA | USA\, an organization that serves individuals living with PWS\, their families\, caregivers\, and more through family support\, advocacy\, and research. \nWhen: Saturday\, September 19\, 2026\nTime: 1:00 PM ET\nWhere: Heritage Hills Golf Club (17 Heritage Hill Drive\, Lakeville\, MA) \nHunter Lens is 28 years old and has Prader-Willi syndrome. He leads a happy\, active life despite his daily challenges. He has friends\, a loving family and his weight is under control. Supporting PWSA | USA\, a non-profit\, will open more doors for Hunter and others who live with PWS\, which ultimately means a better life. Hunter deserves a better life. Please join us on this special day in honor of Hunter to benefit PWSA | USA’s mission. \nCLICK HERE TO LEARN MORE & PURCHASE TICKETS
URL:https://www.pwsausa.org/event/17th-annual-hunter-lens-golf-tournament/
LOCATION:Heritage Hills Golf Club\, 17 Heritage Hill Drive\, Lakeville\, MA\, 02347\, United States
CATEGORIES:Massachusetts
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260930T173000
DTEND;TZID=America/New_York:20260930T210000
DTSTAMP:20260608T074146
CREATED:20260301T140013Z
LAST-MODIFIED:20260301T160448Z
UID:65894-1790789400-1790802000@www.pwsausa.org
SUMMARY:2nd Annual Prader Silly: A Night of Rare Laughs
DESCRIPTION:Hey Nashville! It’s time to laugh in rare form.\nWhen: Wednesday\, September 30\, 2026\nWhere: Zanies Comedy Club | Nashville\, TN\nLEARN MORE AND PURCHASE TICKETS HERE \nOn Wednesday\, September 30th\, 2026\, the iconic Zanies Comedy Club will host the 2nd Annual Prader Silly: A Night of Rare Laughs. This is a one-night-only comedy fundraiser benefiting the Prader-Willi Syndrome Association | USA and will be hosted by PWS parents Aaron Weber and Lucy Sinsheimer of Nashville. \nJoin Aaron Weber and a (**TOP SECRET**) celebrity lineup of nationally acclaimed comics for an evening of laughs for a cause! This is more than a comedy show. It’s a night of gathering\, giving\, and gut-busting laughter — featuring a powerhouse lineup of top-tier comedians\, a silent auction packed with unforgettable prizes\, and several surprise guest performers we’re keeping tucked in our back pocket (Shhh…). Whether you come for the laughs\, the love\, or the chance to stand up for a rare cause\, this is your invitation to show up—for PWS families and others on a rare disease journey. \nClick HERE to watch a TV interview on WSMV Channel 4 show “Nashville Today” on PWS Awareness Day (May 15th\, 2025).
URL:https://www.pwsausa.org/event/2nd-annual-prader-silly-a-night-of-rare-laughs/
LOCATION:Zanies Comedy Night Club Nashville\, 2025 8th Ave S\, Nashville\, TN\, 37204\, United States
CATEGORIES:Tennessee
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261016
DTEND;VALUE=DATE:20261018
DTSTAMP:20260608T074146
CREATED:20251106T202611Z
LAST-MODIFIED:20260223T225202Z
UID:62955-1792108800-1792281599@www.pwsausa.org
SUMMARY:2026 Moms' Retreat
DESCRIPTION:We have reached capacity for the 2026 Moms’ Retreat and moved to a waitlist. If you’d like to join the waitlist\, please click visit https://cvent.me/ZZPORm. For questions\, email afrazier@pwsausa.org.\n\nAbout the 2026 Moms’ Retreat \nEvery day\, moms and female caregivers in the Prader-Willi syndrome (PWS) community give so much of themselves\, often putting their own needs last. This fall\, we’re inviting you to do something just for yourself. \nPWSA | USA’s 2nd Moms’ Retreat will take place October 16–17\, 2026\, at the Grand Hyatt Deer Valley in Park City\, Utah\, and it’s designed specifically for moms and female caregivers who deserve rest\, connection\, and renewal. \nThis intimate weekend will bring together 100 women from across the PWS community for meaningful conversations\, uplifting sessions\, and shared experiences centered on powerful themes like “You Belong Here\,” “Giving Yourself Grace\,” and “You Matter Too.” You’ll leave feeling seen\, supported\, and connected to others who truly understand your journey. \nIf you’ve been waiting for permission to pause\, this is it. Join us for a weekend that creates space for you and friendships that last far beyond it. \nSpots are limited to 100 attendees and will fill quickly. Once capacity is reached\, registration will close and we will move to a waitlist. \n 
URL:https://www.pwsausa.org/event/2026-moms-retreat/
LOCATION:Grand Hyatt Deer Valley Hotel\, 1702 Glencoe Mountain Wy\, Park City\, UT\, 84060\, United States
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270714
DTEND;VALUE=DATE:20270718
DTSTAMP:20260608T074146
CREATED:20251224T172009Z
LAST-MODIFIED:20251224T172009Z
UID:64110-1815523200-1815868799@www.pwsausa.org
SUMMARY:2027 PWSA | USA United in Hope National Convention
DESCRIPTION:When: July 14 – 17\, 2027 \nWhere: Orlando\, FL | Caribe Royale Orlando \nMore details coming soon!
URL:https://www.pwsausa.org/event/2027-pwsa-usa-united-in-hope-national-convention/
LOCATION:Caribe Royale Orlando\, 8101 World Center Drive\, Orlando\, Florida\, 32821
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