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X-WR-CALNAME:Prader-Willi Syndrome Association | USA
X-ORIGINAL-URL:https://www.pwsausa.org
X-WR-CALDESC:Events for Prader-Willi Syndrome Association | USA
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DTSTART;VALUE=DATE:20260627
DTEND;VALUE=DATE:20260920
DTSTAMP:20260622T134725Z
CREATED:20260622T134725Z
LAST-MODIFIED:20260622T134725Z
UID:67660-1782518400-1789862399@www.pwsausa.org
SUMMARY:PWS Roadshow in the Pacific Northwest - All Dates and Locations!
DESCRIPTION:Hosted by the Prader-Willi Syndrome Association of Oregon & Washington\n\nAll PWS families\, physicians\, and nurses are welcome to attend a PWS Roadshow event! You’ll have the opportunity to meet with other local families\, ask the expert panel and connect with PWS professionals in your area\, find out about new and potential future treatments for hyperphagia (excessive hunger)\, and connect with Soleno PACE for product support and resources. Scroll below to find out where and when upcoming roadshow events will take place and click the links to register to attend. We hope to see you there! For any questions\, reach out to Vonnie Sheadel\, President PWSA of Oregon and Washington\, at pwsaorwa@gmail.com.\n\n\n\n\n\n\nBEND – PWS Roadshow – June 27\n\nRegister: https://forms.gle/NBYJwHaX3dQnYtNW7\nSaturday June 27\, 2026 at 1-4 pm\nComfort Suites Redmond Airport\n2243 SW Yew Ave\, Redmond\, OR 97756\n\nRoom reservations: https://www.choicehotels.com/reservations/groups/BM74P5\n\n\nSPOKANE – PWS Roadshow – July 11\nRegister: https://forms.gle/qPhWFB7r1EgiDBpw8\nSaturday\, July 11\, 2026 at 1 pm-4 pm\, \n\nDoubleTree by Hilton Spokane City Center\n322 N Spokane Falls Ct\, Spokane\, WA 99201\nRoom reservations: https://www.hilton.com/en/attend-my-event/pwsacharityevent-july2026/\n\n\nMEDFORD  – PWS Roadshow – July 18\nRegister: https://forms.gle/WMGc4CBgCsedv5Tu8\nSaturday\, July 18\, 2026 at 1 pm-4 pm\, \nBest Western Crater Lake Highway\, White City\n2020 Leigh Way\, White City\, OR 97503 \n\npwsaorwa@gmail.com for  for reduced priced hotel options\n\nSALEM/EUGENE – PWS Roadshow – Aug 22 (Albany)\n\nRegister: https://forms.gle/mzk4Dxd3xekLP6FL9\nSaturday\, August 22 at at 2 pm-5:30 pm\nThe Historic Carousel & Museum\, Albany\, OR\n503 W 1st Ave\, Albany\, OR 97321\nRoom reservations: https://www.choicehotels.com/reservations/groups/RF98S7\n\nOLYMPIA – PWS Roadshow – Sept 19 \nhttps://forms.gle/gho1aKG71nJLV9w5A\nSaturday\, September 19\, 2026 1-4\nRamada Inn Olympia\n(name change in progress to Fairfield Inn & Suites Olympia)\n4520 Martin Way E\, Olympia\, WA 98516\nFor discounted rooms give group code PWS
URL:https://www.pwsausa.org/event/pws-roadshow-in-the-pacific-northwest-all-dates-and-locations/
LOCATION:MA
CATEGORIES:Oregon,Washington
ATTACH;FMTTYPE=image/jpeg:https://www.pwsausa.org/wp-content/uploads/2026/06/PWS-roadshow.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260724
DTEND;VALUE=DATE:20260727
DTSTAMP:20260622T142356Z
CREATED:20260511T211443Z
LAST-MODIFIED:20260622T142356Z
UID:67204-1784851200-1785110399@www.pwsausa.org
SUMMARY:2026 DADventure
DESCRIPTION:A Retreat for Dads of Children Living with Prader-Willi Syndrome \nWhen: Friday\, July 24 – Sunday\, July 26\, 2026\nWhere: Sandia Resort and Casino | Albuquerque\, New Mexico \nCLICK HERE TO LEARN MORE & REGISTER TO ATTEND \nDADventure is a father-led\, independently organized retreat created by Jonathan Andrews and Matt Rivard. This event is a grassroots initiative built specifically to create space for dads of children with Prader-Willi Syndrome to connect. \n“The idea for DADventure began when Matt Rivard and I found ourselves sitting at a bar\, drinking a beer and talking about the unique experience of being dads of children with Prader-Willi Syndrome. We recognized the need for a dedicated space where fathers could come together\, build meaningful connections\, and find strength in shared experience. This retreat was created to foster that community — one grounded in authenticity\, camaraderie\, and mutual support.”  – Jonathan Andrews\, dad to Christopher (living with PWS)
URL:https://www.pwsausa.org/event/2026-dadventure/
LOCATION:Sandia Resort and Casino\, 30 Rainbow Rd\, Albuquerque\, NM\, 87113\, United States
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/05/2026-DC-Fly-In-Graphic-2.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260725T100000
DTEND;TZID=America/New_York:20260725T160000
DTSTAMP:20260715T154549Z
CREATED:20260715T153611Z
LAST-MODIFIED:20260715T154549Z
UID:68003-1784973600-1784995200@www.pwsausa.org
SUMMARY:PWS Community Day in Los Angeles\, CA
DESCRIPTION:When: Saturday\, July 25\, 2026\nWhere: Los Angeles\, CA (California Science Center)\nFree to attend!\n\nCLICK HERE TO REGISTER\nDownload the Flyer Here (find the agenda on page 2)\n\nSoleno Therapeutics\, a Neurocrine Biosciences Company\, is pleased to invite the PWS community to a PWS Community Day in Los Angeles\, California\, for a day filled with connection\, fun\, and education. The planned sessions will take place on Saturday\, July 25\, 2026\, from 1-4 PM PST and families are invited to visit the museum from 10 AM-12:45 PM PST to get acclimated and enjoy the exhibits.\n\nThere will be an opportunity to connect with other PWS caregivers and to participate in a session on self-care focusing on breath work\, emphasizing how you find even a few minutes each day to care for yourself. Dr. Scott Clements will provide an educational session on VYKAT™ XR\, the first and only FDA approved treatment for individuals 4 years of age and older\, living with hyperphagia in PWS. Attendees will also get to hear directly from a caregiver about their journey.\n\nDuring the event\, individuals with PWS as well as their siblings will take part in activities supervised by Corporate Kid Events (CKE). CKE is a nationwide child care service that specializes in working with children with specialized needs\, including PWS.\n\nWe hope to see you there!
URL:https://www.pwsausa.org/event/pws-community-day-in-los-angeles-ca/
LOCATION:California Science Center\, 700 Exposition Park Dr.\, Los Angeles\, CA\, 90037\, United States
CATEGORIES:California
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/07/2027-Convention-Graphic-20.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260808T100000
DTEND;TZID=America/New_York:20260808T160000
DTSTAMP:20260715T154345Z
CREATED:20260715T154345Z
LAST-MODIFIED:20260715T154345Z
UID:68007-1786183200-1786204800@www.pwsausa.org
SUMMARY:PWS Community Day in San Francisco Bay Area
DESCRIPTION:When: Saturday\, August 8\, 2026\nWhere: San Jose\, California (Children’s Discovery Museum of San Jose)\nFree to attend!\n\nCLICK HERE TO REGISTER\nDownload the Flyer Here (find the agenda on page 2)\n\nSoleno Therapeutics\, a Neurocrine Biosciences Company\, is pleased to invite the PWS community to a PWS Community Day in the San Francisco Bay Area\, specifically in San Jose\, CA\, for a day filled with connection\, fun\, and education. The planned sessions will take place on Saturday\, August 8\, 2026\, from 1-4 PM PST and families are invited to visit the museum from 10 AM-12:45 PM PST to get acclimated and enjoy the exhibits.\n\nThere will be an opportunity to connect with other PWS caregivers and to participate in a session on self-care focusing on breath work\, emphasizing how you find even a few minutes each day to care for yourself. Diane Stafford\, MD\, will provide an educational session on VYKAT™ XR\, the first and only FDA approved treatment for individuals 4 years of age and older\, living with hyperphagia in PWS. Attendees will also get to hear directly from a caregiver about their journey.\n\nDuring the event\, individuals with PWS as well as their siblings will take part in activities supervised by Corporate Kid Events (CKE). CKE is a nationwide child care service that specializes in working with children with specialized needs\, including PWS.\n\nWe hope to see you there!
URL:https://www.pwsausa.org/event/pws-community-day-in-san-francisco-bay-area/
LOCATION:Children’s Discovery Museum of San Jose\, 180 Woz Way\, San Jose\, CA\, 95110\, United States
CATEGORIES:California
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/07/2027-Convention-Graphic-21.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260812
DTEND;VALUE=DATE:20260813
DTSTAMP:20260622T135800Z
CREATED:20260622T135800Z
LAST-MODIFIED:20260622T135800Z
UID:67663-1786492800-1786579199@www.pwsausa.org
SUMMARY:PWS Picnic - Hosted by PWSA of Oregon & Washington Chapter
DESCRIPTION:PWS Families in the Pacific Northwest! You’re invited to attend PWSA of Oregon & Washington Chapter’s PWS Picnic on August 12\, 2026. \nWhere: 18206 NE 399 street\, Amboy WA 98601 (the same location as previous years)  \n12-14 free rooms are provided for those coming from out of town at Red-Lion Inn & Suites-Salmon Creek: 13206 NE Hwy 99\, Vancouver\, WA 98686. \nFor questions\, please contact Vonnie Sheadel at pwsaorwa@gmail.com.
URL:https://www.pwsausa.org/event/pws-picnic-hosted-by-pwsa-of-oregon-washington-chapter/
LOCATION:MA
CATEGORIES:Oregon,Washington
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/06/Blog-Headers-8.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260814
DTEND;VALUE=DATE:20260818
DTSTAMP:20260615T140447Z
CREATED:20260615T140447Z
LAST-MODIFIED:20260615T140447Z
UID:67490-1786665600-1787011199@www.pwsausa.org
SUMMARY:PWS Moms' Hiking Weekends
DESCRIPTION:Created and hosted by Amy McDougall\, mom to Noelle (23\, living with PWS)\, President of the Prader-Willi Alliance of New York \nCLICK HERE TO LEARN MORE \nFrom the PWS Moms’ Hiking Weekends Website: \nThe original PWS Moms’ Hiking Weekend started with two PWS moms who became hiking buddies\, then recognized what a respite their adventures in nature had become. The idea for a retreat was born\, with the initial event in June 2024 turning into an incredible weekend of laughter\, friendship\, blisters\, love\, organizational planning\, and reminders of the fact that the best way to truly live this special needs life is to walk side by side with others. \nRespite in nature and community building are the foundation of the PWS Moms’ Hiking Weekends.  \nWant to register for a weekend or get additional information? \nEmail Amy at pwshikingmom@gmail.com to join the mailing list or request to join the “PWS Moms’ Hiking Weekend” group on Facebook \nRemaining 2026 Hiking Locations and Dates: \nCoram / West Glacier\, Montana\nAugust 14-17\, 2026 (Friday to Monday) \nGatlinburg\, TN\nOctober 9-12\, 2026 (Friday to Monday)
URL:https://www.pwsausa.org/event/pws-moms-hiking-weekends/
LOCATION:MA
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/06/Blog-Headers-7.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260821
DTEND;VALUE=DATE:20260823
DTSTAMP:20260203T162216Z
CREATED:20251106T202301Z
LAST-MODIFIED:20260203T162216Z
UID:62952-1787270400-1787443199@www.pwsausa.org
SUMMARY:2026 Residential Providers Conference
DESCRIPTION:Registration is NOW OPEN! Residential Providers are invited to join PWSA | USA for the 2026 Residential Providers Conference – an unforgettable gathering dedicated to enhancing care\, sharing insights\, and strengthening community among residential providers in the PWS space.\n\n\n \n\n\n August 21–22\, 2026\n\n\n The Kimpton Brice Hotel | Savannah\, GA\n\n\n \n\n\nFor the second time\, we’re bringing together residential professionals from across the country to learn from colleagues and field experts\, exchange best practices\, and build collective expertise to improve outcomes for individuals living with Prader-Willi syndrome.\n\n\n \n\n\nThis conference is exclusively for residential providers and offers a unique opportunity to connect\, collaborate\, and grow alongside peers who understand the vital work you do every day.\n\n\n \n\n\nYou can register\, find the link to our room block\, and learn more at https://www.pwsausa.org/residentialprovidersconference/.
URL:https://www.pwsausa.org/event/2026-residential-providers-conference/
LOCATION:Kimpton Brice Hotel\, 601 E Bay St\, Savannah\, GA\, 31401\, United States
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2025/11/Residential-Providers-Conference-FBLinkedIn-2-png.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T130000
DTEND;TZID=America/New_York:20260919T130000
DTSTAMP:20260511T142547Z
CREATED:20260511T142512Z
LAST-MODIFIED:20260511T142547Z
UID:67182-1789822800-1789822800@www.pwsausa.org
SUMMARY:17th Annual Hunter Lens Golf Tournament
DESCRIPTION:Join the Lens family for a day of golf\, good spirits\, and great friends as you golf and dine at Heritage Hills Golf Club in Lakeville\, MA. This event is celebrating its 17th year raising critical funding for PWSA | USA\, an organization that serves individuals living with PWS\, their families\, caregivers\, and more through family support\, advocacy\, and research. \nWhen: Saturday\, September 19\, 2026\nTime: 1:00 PM ET\nWhere: Heritage Hills Golf Club (17 Heritage Hill Drive\, Lakeville\, MA) \nHunter Lens is 28 years old and has Prader-Willi syndrome. He leads a happy\, active life despite his daily challenges. He has friends\, a loving family and his weight is under control. Supporting PWSA | USA\, a non-profit\, will open more doors for Hunter and others who live with PWS\, which ultimately means a better life. Hunter deserves a better life. Please join us on this special day in honor of Hunter to benefit PWSA | USA’s mission. \nCLICK HERE TO LEARN MORE & PURCHASE TICKETS
URL:https://www.pwsausa.org/event/17th-annual-hunter-lens-golf-tournament/
LOCATION:Heritage Hills Golf Club\, 17 Heritage Hill Drive\, Lakeville\, MA\, 02347\, United States
CATEGORIES:Massachusetts
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/05/Soleno-Letter-Fbook-1.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260930T173000
DTEND;TZID=America/New_York:20260930T210000
DTSTAMP:20260301T160448Z
CREATED:20260301T140013Z
LAST-MODIFIED:20260301T160448Z
UID:65894-1790789400-1790802000@www.pwsausa.org
SUMMARY:2nd Annual Prader Silly: A Night of Rare Laughs
DESCRIPTION:Hey Nashville! It’s time to laugh in rare form.\nWhen: Wednesday\, September 30\, 2026\nWhere: Zanies Comedy Club | Nashville\, TN\nLEARN MORE AND PURCHASE TICKETS HERE \nOn Wednesday\, September 30th\, 2026\, the iconic Zanies Comedy Club will host the 2nd Annual Prader Silly: A Night of Rare Laughs. This is a one-night-only comedy fundraiser benefiting the Prader-Willi Syndrome Association | USA and will be hosted by PWS parents Aaron Weber and Lucy Sinsheimer of Nashville. \nJoin Aaron Weber and a (**TOP SECRET**) celebrity lineup of nationally acclaimed comics for an evening of laughs for a cause! This is more than a comedy show. It’s a night of gathering\, giving\, and gut-busting laughter — featuring a powerhouse lineup of top-tier comedians\, a silent auction packed with unforgettable prizes\, and several surprise guest performers we’re keeping tucked in our back pocket (Shhh…). Whether you come for the laughs\, the love\, or the chance to stand up for a rare cause\, this is your invitation to show up—for PWS families and others on a rare disease journey. \nClick HERE to watch a TV interview on WSMV Channel 4 show “Nashville Today” on PWS Awareness Day (May 15th\, 2025).
URL:https://www.pwsausa.org/event/2nd-annual-prader-silly-a-night-of-rare-laughs/
LOCATION:Zanies Comedy Night Club Nashville\, 2025 8th Ave S\, Nashville\, TN\, 37204\, United States
CATEGORIES:Tennessee
ATTACH;FMTTYPE=image/jpeg:https://www.pwsausa.org/wp-content/uploads/2026/02/2_PraderSilly_RegisterTickets.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261016
DTEND;VALUE=DATE:20261018
DTSTAMP:20260223T225202Z
CREATED:20251106T202611Z
LAST-MODIFIED:20260223T225202Z
UID:62955-1792108800-1792281599@www.pwsausa.org
SUMMARY:2026 Moms' Retreat
DESCRIPTION:We have reached capacity for the 2026 Moms’ Retreat and moved to a waitlist. If you’d like to join the waitlist\, please click visit https://cvent.me/ZZPORm. For questions\, email afrazier@pwsausa.org.\n\nAbout the 2026 Moms’ Retreat \nEvery day\, moms and female caregivers in the Prader-Willi syndrome (PWS) community give so much of themselves\, often putting their own needs last. This fall\, we’re inviting you to do something just for yourself. \nPWSA | USA’s 2nd Moms’ Retreat will take place October 16–17\, 2026\, at the Grand Hyatt Deer Valley in Park City\, Utah\, and it’s designed specifically for moms and female caregivers who deserve rest\, connection\, and renewal. \nThis intimate weekend will bring together 100 women from across the PWS community for meaningful conversations\, uplifting sessions\, and shared experiences centered on powerful themes like “You Belong Here\,” “Giving Yourself Grace\,” and “You Matter Too.” You’ll leave feeling seen\, supported\, and connected to others who truly understand your journey. \nIf you’ve been waiting for permission to pause\, this is it. Join us for a weekend that creates space for you and friendships that last far beyond it. \nSpots are limited to 100 attendees and will fill quickly. Once capacity is reached\, registration will close and we will move to a waitlist. \n 
URL:https://www.pwsausa.org/event/2026-moms-retreat/
LOCATION:Grand Hyatt Deer Valley Hotel\, 1702 Glencoe Mountain Wy\, Park City\, UT\, 84060\, United States
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2025/11/Moms-Retreat-2026-png.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261113T000000
DTEND;TZID=America/New_York:20261113T000000
DTSTAMP:20260622T143557Z
CREATED:20260622T143530Z
LAST-MODIFIED:20260622T143557Z
UID:67683-1794528000-1794528000@www.pwsausa.org
SUMMARY:2026 Cocktails for a Cause
DESCRIPTION:PWS community! Join PWSA | USA CEO Stacy Ward and her family for an unforgettable evening of support\, hope\, and community. Hosted at the scenic and historic Brown’s Revolution Hall\, this event will bring together families\, friends\, and supporters for an inspiring evening of cocktails\, conversation\, and compassion\, all aimed at raising awareness and funds for Prader-Willi syndrome (PWS). \nWhen: Friday\, November 13\, 2026\nWhere: Brown’s Revolution Hall (425 River Street\, Troy\, NY)\nLearn More and Purchase Tickets \nGuests will enjoy signature cocktails\, delicious hors d’oeuvres\, and the unique ambiance of the Revolution Hall\, known for its charm and exceptional service. The night will feature engaging speakers\, including families impacted by PWS\, as well as opportunities to learn more about the syndrome and how funds raised will directly benefit those affected by it. The event will also offer a raffle\, silent auction\, and other interactive ways to contribute to this important cause. \nPWS is a rare\, complex genetic disorder that affects multiple systems in the body\, often leading to challenges with hunger regulation\, cognitive development\, and behavior. Funds raised at this event will support research\, family resources\, and advocacy initiatives aimed at improving the lives of those with PWS.
URL:https://www.pwsausa.org/event/2026-cocktails-for-a-cause/
LOCATION:Brown’s Revolution Hall\, 425 River Street\, Troy\, NY\, 12180\, United States
CATEGORIES:New York
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/06/cocktails-for-a-cause-logo2-1.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261114T073000
DTEND;TZID=America/New_York:20261114T073000
DTSTAMP:20260707T201251Z
CREATED:20260707T201251Z
LAST-MODIFIED:20260707T201251Z
UID:67888-1794641400-1794641400@www.pwsausa.org
SUMMARY:Wave of Hope 2026
DESCRIPTION:Hosted by the Florida Chapter of Prader-Willi Syndrome \nWhen: Saturday\, November 14\, 2026 | 7:30 AM\nWhere: Satellite Beach\, FL 32937 US \nCLICK HERE TO LEARN MORE AND TO REGISTER \nRun 2 Miles. Change Local Lives. \nJoin us in supporting the Florida Chapter of Prader-Willi Syndrome — where every dollar raised stays right here in Florida to help local families. \nPrader-Willi Syndrome (PWS) is a complex genetic disorder that affects appetite regulation\, development\, and overall health. Families face lifelong challenges — and they need our community behind them. \nYour participation in this 2-mile race helps fund:\n– Local family support\n– Education & advocacy\n– Community connection events\n– Resources for newly diagnosed families \nWhen you run\, donate\, or share — you’re making a difference.
URL:https://www.pwsausa.org/event/wave-of-hope-2026/
LOCATION:MA
CATEGORIES:Florida
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/07/Screenshot-2026-07-07-160943.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261212T140000
DTEND;TZID=America/New_York:20261212T160000
DTSTAMP:20260622T140422Z
CREATED:20260622T140422Z
LAST-MODIFIED:20260622T140422Z
UID:67666-1797084000-1797091200@www.pwsausa.org
SUMMARY:PWS Christmas & Retreat - Hosted by PWSA of Oregon & Washington Chapter
DESCRIPTION:PWS Families! You’re invited to join the PWSA of Oregon & Washington Chapter for their PWS Christmas & Retreat in Portland\, OR. \nRegister here \nWhen: Saturday\, December 12\, 2026 | 2 – 4 PM\nWhere: Oxford Suites Portland – Jantzen Beach 12226 N Jantzen Dr\, Portland\, OR 97217\nBook hotel here\n \nFree to Prader-Willi Syndrome Families\n \nContact PWSA of Oregon & Washington Chapter for reduced priced hotel options pwsaorwa@gmail.com.
URL:https://www.pwsausa.org/event/pws-christmas-retreat-hosted-by-pwsa-of-oregon-washington-chapter/
LOCATION:MA
CATEGORIES:Oregon,Washington
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/06/Blog-Headers-9.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270714
DTEND;VALUE=DATE:20270718
DTSTAMP:20260701T172957Z
CREATED:20251224T172009Z
LAST-MODIFIED:20260701T172957Z
UID:64110-1815523200-1815868799@www.pwsausa.org
SUMMARY:2027 PWSA | USA United in Hope National PWS Convention
DESCRIPTION:What: PWSA | USA’s 2027 (39th) United in Hope National PWS Convention\nWhen: July 14 – 17\, 2027\nWhere: Orlando\, FL | Caribe Royale Orlando \nCLICK HERE TO LEARN MORE AND TO REGISTER \nWe are thrilled to officially kick off registration for PWSA | USA’s 39th United in Hope National PWS Convention\, taking place July 14-17\, 2027\, at the beautiful Caribe Royale Orlando in Orlando\, Florida. \nOur biennial convention is more than an event. It’s a powerful reminder of what makes this community so special. Hundreds of families members\, individuals with PWS\, clinicians\, researchers\, professional providers\, and advocates will come together with a shared commitment to learning\, connection\, and support. There is nothing quite like being in a space filled with people who understand this journey\, and we hope you’ll be part of it in 2027. \nConvention Breakdown\nThe 2027 convention will break down into four distinct conferences and our ever popular PWS and sibling camps. Each convention program is designed to meet the unique needs of our attendees while creating opportunities to learn from one another: \nMedical & Scientific Conference (June 14-15\, 2027) – The Medical & Scientific Conference brings together clinicians\, scientists\, researchers\, and medical professionals from across disciplines for two days of collaboration\, discovery\, and progress. \nProfessional Providers Conference (June 14-15\, 2027) – The Professional Providers Conference brings together educational\, social services\, and residential professionals for a dynamic exchange of knowledge\, experience\, and expertise. \nFamily Conference (June 16-17\, 2027)  – The two-day Family Conference is created specifically for parents\, caregivers\, family members\, and supporters of a loved one with PWS. The attendees are skillfully guided through a choice of multiple learning tracks covering an array of topics that can be tailored to their individual preferences. \nAdults with PWS Conference (June 16-17\, 2027)  – Specifically for adults living with PWS who are 18 years and older (learn more below). \nPWS and Sibling Camps (June 16-17\, 2027) – Separated into four camps for different age groups\, the PWS and Sibling Camps provide a fun space for your loved ones while you enjoy the Family Conference sessions. Our PWS Camp Program is a convention favorite\, but spots are limited and camps fill up quickly. Available camps include: \n– Little Tikes (0–24 months)\n– Junior Adventure (2–6 years old)\n– PWS Adventure (7 years and up)\n– Sibling Camp (7–12 years old) \nIf camp is part of your convention plans\, don’t wait to register your loved ones. \nNew for 2027: A Dedicated Conference for Adults with PWS\nPWSA | USA is pleased to offer a dedicated Adults with PWS Conference that will take place during the Family Conference. This is a full two‑day experience designed specifically for individuals with Prader-Willi syndrome aged 18 and older\, creating space for learning\, connection\, and engagement with topics relevant to adulthood. \nIMPORTANT: The Adults with PWS Conference runs concurrent with the PWS Camps. You and your loved one will have to decide if they prefer to attend the PWS Adventure Camp or the Adults with PWS Conference. They won’t be allowed to switch from the Adults with PWS Conference to the Adventure Camp at any point during the convention. Find more details about the Adults with PWS Conference on our Convention Details webpage. \nBook Your Stay at the Caribe Royale Orlando Resort\nReserve your room in PWSA | USA’s convention room block at the Caribe Royale Orlando. Want to learn more about the resort itself? Visit the Caribe Royale website for a closer look at this incredible property\, and check our Convention FAQ page for answers to common resort questions. \n\n\nLearn More Before You Register\nVisit our convention website for full details on everything the 2027 United in Hope National PWS Convention has to offer. \nQuestions? We’re Here to Help\nIf you have questions or run into any issues while registering\, our team is ready to help: \nEmail: info@pwsausa.org \nPhone: (941) 312-0400 \nOffice hours: Monday-Friday\, 9 AM-5 PM ET (closed on holidays) \nIf you reach out by phone or email outside of these hours\, a member of our staff will follow up with you within two business days. \nSee You in Orlando\nWhether this is your first convention or you’ve attended many over the years\, we hope you leave the 2027 United in Hope National PWS Convention feeling informed\, inspired\, and deeply connected. Thank you for being part of the PWSA | USA community and for all the ways you support individuals with PWS and their families. \nWe can’t wait to welcome you to Orlando and share an unforgettable week together.
URL:https://www.pwsausa.org/event/2027-pwsa-usa-united-in-hope-national-convention/
LOCATION:Caribe Royale Orlando\, 8101 World Center Drive\, Orlando\, Florida\, 32821
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