Archives: Events

Views Navigation

Event Views Navigation

Today

PWS – Aging Research and Health Update Webinar Part I

REGISTER IN ADVANCE HERE Presenters: Lynn Garrick, RN, MSN, PWSA l USA Medical and Research Coordinator, Barb Dorn, RN BSN, PWSA l USA Volunteer Overview:  This webinar will highlight current research in the area of aging and PWS.  It will also identify the most common health issues being reported by parents, guardians and caregivers.  The […]

PWS – Aging and Health Update Webinar Part 2

REGISTER IN ADVANCE HERE Presenters: Barb Dorn, RN BSN, PWSA l USA Volunteer Overview:  This webinar will continue discussion on commonly reported health issues by sharing risk factors, screening and monitoring tools as well as prevention and management strategies for additional health topics – respiratory issues, weight gain/obesity, low bone density, cardiac issues (high BP, […]

ECHO 4 PWS Webinar: Cardiac Concerns

Join PWSA | USA for our August ECHO 4 PWS Webinar, Cardiac Concerns with Dr. James Loker. On August 15, 2024, at 5:00 p.m. EST, Dr. Loker will discuss Cardiac disease, which accounts for 16% of all deaths in PWS. He will share the unique features of PWS that may predispose them to cardiovascular problems. […]

PWSA | USA’s Residential Providers Conference

Kimpton Brice Hotel 601 E Bay St, Savannah, GA, United States

As residential providers and caregivers are integral to the health and well-being of those living with PWS, it is critical they have access to the latest information. PWSA | USA’s 2024 Residential Providers Conference, Empowerment Heroes: Reveal Your Superpowers, will offer a variety of lectures and workshops in a collaborative space where professionals can exchange practice-driven […]

1st Annual Gavin Gill Classic Golf Tournament: Driving for a Cure

North Hill Country Club 29 Merry Avenue, Duxbury, MA

Calling all New Englanders: Join the Gill Family for a full morning of fun activities! The 1st Annual Gavin Gill Classic Golf Tournament – Driving for a Cure, will take place on Saturday, September 7, 2024, at 9:00 a.m. EST at North Hill Country Club (29 Merry Avenue, Duxbury, MA 02332). Enjoy time with family […]

ECHO 4 PWS Webinar: Feeding and Swallowing

Join PWSA | USA for our September ECHO 4 PWS Webinar, Feeding and Swallowing with Roxann Diez Gross, PhD, CCC/SLP, and Ann Scheimann, MD, MBA. This presentation is designed to enhance the knowledge of the assessment and management of the clinical features of PWS and increase the clinical knowledge of the management of feeding /swallowing […]

The Inaugural RMC Foundation Golf Outing

Ritz-Carlton Members Golf Club 15150 70th Terrace E,, Bradenton, FL, United States

Tee off for a great cause at RMC's annual golf tournament, benefiting innovative research and community support initiatives. Enjoy a round of golf while making a positive impact on those living with Prader-Willi Syndrome. When: Monday, September 30, 2024 8:30 a.m. shotgun start Where: Ritz-Carlton Members Golf Club Bradenton, FL Register TODAY at https://www.thermcfoundation.org/golf2024. The […]

15th Annual Hunter Lens Golf Tournament

The Back Nine Club 17 Heritage Hill, Lakeville, MA, United States

Calling all New Englanders – Join the Lens family for a full afternoon of fun activities! The 15th Annual Hunter Lens Golf Tournament will take place Saturday, October 5, 2024, at 12:00 p.m. EST at the Back Nine Club (17 Heritage Hill Dr., Lakeville, MA 02347). Enjoy time with family and friends while participating in golf, […]

No Gimmes for Jimmy Golf Tournament

Rock Spring Golf Club 90 Rock Spring Rd, West Orange, NJ, United States

Join us for a day on the links on Friday, October 11, 2024, at Rock Spring Golf Club in West Orange, NJ in remembrance of Jim Worthington. A portion of the proceeds will be donated to the PWSA, in Jim’s name. This event is inclusive for golfers and non-golfers alike – all skill levels are […]

Dance Silly for Prader-Willi

Trumbull Career & Technical Center 528 Educational Hwy NW, Warren, OH, United States

Hosted by PWS Mom Michele Hampton Join us for the inaugural Dance Silly for Prader-Willi event—a lively celebration to support the Prader-Willi Syndrome Association USA! This special occasion honors our daughter Jayda’s journey with PWS and the invaluable support we've received from this incredible organization. Get ready for a FUN, FAMILY, DANCE PARTY like no […]

4th Annual Answers for Audrey Trivia Night

Incarnate Word Academy 2788 Normandy Ave., St. Louis, MO, United States

Hosted by PWS Mom Michelle Spring Please join us at the 4th Annual (Trivia) Answers for Audrey event on Saturday, October 12th, 2024 at the Incarnate Word Academy (2788 Normandy Dr, Bel-Nor, MO, United States, Missouri)! Doors open at 6:30 pm and trivia starts at 7:00 pm. Our daughter, Audrey Rose, was diagnosed with Prader-Willi […]

ECHO 4 PWS Webinar: Psychiatry and PWS with Dr. Deepan Singh

Join PWSA | USA for our October ECHO 4 PWS Webinar, Psychiatry and PWS with Deepan Singh, MD, on October 24, 2024, at 12:00 p.m. EST. More details coming soon! REGISTER IN ADVANCE HERE PWSA | USA launched our Health Care Provider Project ECHO Series, ECHO 4 PWS, in 2023. We are proud to offer this […]

Scroll to top