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PWS Jeopardy!

When: Monday, May 15, 2023 | Games at 7:30 pm EST and 9:00 pm EST Where: Zoom Cost: Free! To celebrate and raise awareness for PWS Awareness Month, bring your family, friends, and brain power for a fun night of PWS Jeopardy. FREE for all to attend! REGISTER BELOW: Click Here to register to attend […]

PWSA | USA 2023 National Convention

We invite you to join us June 21 – June 24, 2023, in sunny Orlando, Florida at the Hilton Orlando Buena Vista Palace. PWSA | USA’s Convention will provide exciting opportunities to learn, connect (and reconnect), and hear about the latest PWS research. Taking place in Orlando, FL on June 21-24, 2023, this world-class event will […]

FDA Externally-Led Patient-Focused Drug Development Meeting

Hilton Orlando Buena Vista Palace 1900 East Buena Vista Drive, Lake Buena Vista, Florida, United States

Your Voice Will Make a Difference! Prader-Willi Syndrome’s First Externally Led Patient-Focused Drug Development Meeting will take place June 22, 2023 from 12:00 - 4:30pm EST both Virtually Via Zoom and In-Person at the Hilton Orlando Buena Vista Palace. CLICK HERE TO REGISTER TO ATTEND THE EL-PFDD MEETING VIRTUALLY The Prader-Willi Syndrome community is invited […]

Siblings Community Conversation

Siblings of loved ones living with PWS are invited to join PWSA | USA for our next Siblings Community Conversation on July 12, 2023, at 2:00 p.m. EST. These sibling community conversation webinars will take place the 2nd Wednesday of every month. This discussion provides a safe space for dialogue between siblings of a person […]

August Siblings Community Conversation

Siblings of loved ones living with PWS are invited to join PWSA | USA for our next Siblings Community Conversation on August 9, 2023, at 8:00 p.m. EST. These sibling community conversation webinars will take place the 2nd Wednesday of every month. This discussion provides a safe space for dialogue between siblings of a person […]

ECHO 4 PWS – Endocrinology 101

Register TODAY for PWSA | USA's next Healthcare Provider Project ECHO Series webinar, Endocrinology 101, which will be held Tuesday, September 26, 2023 at 6:00 p.m. EST. We are proud to offer this FREE opportunity to healthcare professionals who work with patients affected by Prader-Willi syndrome (PWS) or are interested in learning more about PWS, and to […]

2nd Annual No Gimmies for Jimmy

Rock Spring Golf Club 90 Rock Spring Rd, West Orange, NJ, United States

2ND ANNUAL NO GIMMES FOR JIMMY CHARITY GOLF OUTING OCTOBER 6, 2023- 8AM CHECK-IN, 9AM SHOT-GUN START NO GIMMES FOR JIMMY 2ND ANNUAL CHARITY GOLF OUTING IN LOVING MEMORY OF JIM WORTHINGTON A PWSA EVENT IN SUPPORT OF PRADER-WILLI SYNDROME JOIN US FOR A DAY ON THE LINKS IN REMEMBRANCE OF JIM WORTHINGTON. A PORTION […]

14th Annual Hunter Lens Golf Tournament

The Back Nine Club 17 Heritage Hill, Lakeville, MA, United States

14TH ANNUAL HUNTER LENS GOLF TOURNAMENT OCTOBER 7, 2023 THE BACK NINE CLUB 17 HERITAGE HILL DR, LAKEVILLE, MA 02347 About Hunter Hunter is 24 years old and has Prader-Willi syndrome. He leads a happy, active life despite his daily challenges. He has friends, a loving family and his weight is under control. Supporting PWSA  […]

2023 Mom’s Retreat

When: October 12-15, 2023 Where: Palm Springs, California PWSA | USA is excited to host our first-ever Mom's Retreat in October 2023. We will welcome 30 PWS moms and full-time female caregivers to the Omni Rancho Las Palmas Resort & Spa in Palm Springs, CA. The Moms' Retreat application is now available and is due […]

3rd Annual Answers for Audrey

Incarnate Word Academy 2788 Normandy Ave., St. Louis, MO, United States

What: (Trivia) Answers for Audrey Where: Incarnate Word Academy 2788 Normandy Avenue St. Louis, MO 63121 When: Saturday October 21, 2023 CLICK HERE TO LEARN MORE

U.S. Senate Committee on Aging Press Conference

U.S. Senate Committee Hearing Live Broadcast Link Now Available - CLICK HERE TO ACCESS This Thursday, PWSA | USA advocates will participate in a groundbreaking opportunity for the PWS community! On October 26, 2023, our advocates will be present for a press conference on Capitol Hill, hosted by Senator Mike Braun (R-IN), Senator Kirsten Gillibrand […]

Give the Gift of Hope: 2023 Angel Drive

As children, we always remember our favorite gifts bestowed at holiday times: a shiny red bike, a beloved doll, a new baseball glove. These gifts and the loved ones who gave them to us are forever etched in our memories now and always. As the holiday season begins and the new year approaches, PWSA | […]

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