Consider Including PWSA | USA in your Planned Giving

Contributed by Denise Servais, M. Ed, CCC-SLP

One way to make a lasting impact and to honor a loved one with Prader-Willi syndrome is by remembering Prader-Willi Syndrome Association | USA in your will or estate plan. Creating a gift in your will or estate, at any level, is a special way to show your support for the important work that PWSA | USA does and can be done easily by adding language to your existing will, or simply naming PWSA | USA as a beneficiary when you create your will. This generous act serves as an important legacy for you and your family and can help to ensure support for our mission for generations to come.

One such donor recently named PWSA | USA in her will with a sizable gift. This donor had learned about the syndrome and the valuable work that the organization was doing through her connection with former Board member Steve Leightman. After consulting with her financial advisor and attorney, this individual revised her will and included PWSA | USA in her estate plan. She learned that Steve has a granddaughter with PWS, and felt at peace knowing that her generous contribution will help fund programs such as our new Intensive Support Services and School Success Toolkits. Her gift will also enhance programs in the areas of Family Support, Advocacy, and Research for Steve’s granddaughter and so many others nationwide.

We recently learned about another generous family who has made plans for a legacy gift upon the sunsetting of a Special Needs Trust for their son living with PWS. Due to the support they have received from PWSA | USA over the past two decades, they have arranged for PWSA | USA to receive a lump sum donation that will come to us many, many years from now. It will serve as a gift of gratitude in honor of their PWS journey.

We are very grateful to all our of donors who are essential in helping us make a difference in the lives of those with Prader-Willi syndrome and their families today and well into the future.

If you would like to learn more on how to include PWSA | USA in your will or estate plan, please contact Melanie McDonald at 941-487-6742 or email at

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