The Better Care Better Jobs Act, HR 4131, just obtained more bipartisan support in the US House of Representatives! We first alerted our community to show their support for this piece of legislation less than a week ago. Since then, Representative Hakeem S. Jeffries, [D-NY-8], Representative Veronica Escobar, [D-TX-16], Representative Cori Bush, [D-MO-1] and Representative Ed Perlmutter, [D-CO-7] have joined forces with 132 other US representatives to show their continued support for the rare disease community. The Better Care Better Jobs Act presents an historic opportunity to significantly improve the lives of our families and all Americans with complex medical needs and disabilities. By recognizing that caregiving IS infrastructure, investing in home- and community-based services (HCBS), getting eligible people off of Medicaid waiting lists, providing better support for family caregivers and better pay for home health workers, a brighter future is within our reach.
Help encourage your elected officials to support the rare disease community by sending a letter of support: Support the Better Care Better Jobs Act (p2a.co)
To read more about The Better Care Better Jobs Act, visit: Text - H.R.4131 - 117th Congress (2021-2022): Better Care Better Jobs Act | Congress.gov | Library of Congress