Calling all fathers! A study on the role of PWS male caregivers has been approved by PWSA (USA). Dr. Leon Caldwell has been awarded a grant to do a study on the needs and issues of PWS fathers and other male caregivers. The purpose of this study is to learn about the coping and parenting […]
We would like to thank Mayim Bialik from the hit comedy TV show “The Big Bang Theory” for her wonderful blog article she wrote about Prader-Willi syndrome, PWSA (USA) and this years Angel Drive on her website GrokNation. It begins with a community! Let’s Save and Transform Lives! Click the link below to read the full […]
PWSAI (Ireland) has released a new film that was produced in cooperation with IPWSO and PWSA (USA). The film is Therapeutic Interventions for the Young Child with Prader-Willi Syndrome presented by Janice Agarwal, CNDT-PT The film was funded from the proceeds of the Galway Cycle 2014. We are very grateful to Janice for her participation […]
Reminder – It is not too late to donate towards #GivingTuesday and have your donation matched! Since we announced our $7,000 match for today, an additional donor has stepped forward and added $3,000 to our matching fund for a total of $10,000. He has asked that we extend the matching period through this week so […]
#Giving Tuesday is a day defined by generosity. On the Tuesday after Thanksgiving, December 1, please join with so many others by making a donation to the PWSA (USA) Angel Drive for 2015. As an added bonus, a generous board member will match all donations made on December 1, up to $7,000 total. So now is […]
Dear Friends, The holidays are typically a food fest in our country – and can be a time of stress for our PWS families. With good planning, it is possible to make it a happy holiday for all. If you will be with relatives, carefully plan ahead of time and communicate the importance of food […]
Thank you to our PWS community for responding to the challenge match announced by Prader-Willi California Foundation (PWCF). Donors responded by the October 30th deadline to activate the $10,000 match and the release of an additional $10,000 match to be provided at a later date by PWCF. We have raised $385,000 for this study that […]
I would like to assure our PWS members that both PWSA (USA) and FPWR have been involved with discussions with Zafgen and the FDA regarding safety issues on the Zafgen clinical trial. A “partial hold” means that the study can continue with additional safety monitoring. We are in full support of the additional safety monitoring […]